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Table 2 Distress levels and marking of unexpected information in IPOS: physical symptoms

From: Feasibility, use and benefits of patient-reported outcome measures in palliative care units: a multicentre observational study

Reported distress

Patient report (IPOS)

n (% column)

Marked unexpected

n (% row)

Association distress level & marking unexpected

Chi2-test (two-sided)*

Pain

(n = 137)

not at all/slight**

49 (35.8)

3 (6.1)

Chi2 (4) = 17.1

p = .002

moderate

34 (24.8)

5 (14.7)

severe/overwhelming

54 (39.4)

13 (24.1)

overall

137 (100.0)

21 (15.3)

Shortness of breath

(n = 136)

not at all/slight

88 (64.7)

3 (3.4)

Chi2 (4) = 17.1

p = .002

moderate

19 (13.9)

4 (21.1)

severe/overwhelming

29 (21.2)

6 (20.7)

overall

136 (100.0)

13 (9.6)

Weakness or lack of energy

(n = 136)

not at all/slight

20 (14.7)

1 (5.0%)

Chi2 (4) = 2.8

p = .588

moderate

39 (28.7)

2 (5.1%)

severe/overwhelming

77 (56.6)

7 (9.1%)

overall

136 (100.0)

10 (7.4)

Nausea

(n = 136)

not at all/slight

93 (68.4)

1 (1.1)

Chi2 (4) = 24.3

p < .001

moderate

13 (9.6)

1 (7.7)

severe/overwhelmingly

30 (22.1)

7 (23.3)

overall

136 (100.0)

9 (6.6)

Vomiting

(n = 136)

not at all/slight

104 (76.5)

1 (1)

Chi2 (4) = 27.8

p < .001

moderate

9 (6.6)

0 (0.0)

severe/overwhelming

23 (16.9)

6 (26.1)

overall

136 (100.0)

7 (5.1)

Poor appetite

(n = 136)

not at all/slight

68 (50.0)

4 (5.9)

Chi2 (4) = 1.7

p = .781

moderate

20 (14.7)

2 (10.0)

severe/overwhelming

48 (35.3)

3 (6.3)

overall

136 (100.0)

9 (6.6)

Constipation

(n = 135)

not at all/slight

81 (60.0)

1 (1.2)

Chi2 (4) = 25.3

p < .001

moderate

15 (11.1)

3 (20.0)

severe/overwhelming

39 (28.9)

10 (25.6)

overall

135 (100.0)

14 (10.4)

Sore or dry mouth

(n = 136)

not at all/slight

49 (36.0)

0 (0.0)

Chi2 (4) = 16.8

p = .002

moderate

33 (24.3)

6 (18.2)

severe/overwhelming

54 (39.7)

16 (29.6)

overall

136 (100.0)

22 (16.2)

Drowsiness

(n = 137)

not at all/slight

49 (35.8)

2 (4.1)

Chi2 (4) = 6.2

p = .182

moderate

40 (29.2)

3 (7.5)

severe/overwhelming

48 (35.0)

8 (16.7)

overall

137 (100.0)

13 (9.5)

Poor mobility

(n = 137)

not at all/slight

22 (16.1)

1 (4.5)

Chi2 (4) = 1.6

p = .806

moderate

27 (19.7)

1 (3.7)

severe/overwhelming

88 (64.3)

8 (9.1)

overall

137 (100.0)

10 (7.3)

  1. * The Chi2-test was calculated for the five-point Likert scale without data reduction to the three-point format shown here; this is solely for the sake of clearer presentation
  2. ** For a more concise presentation of some results, levels of distress of specific symptoms are not presented as the original five-point scale but reduced to three categories