Table 1 Themes identified by focus group members
From: Dying, death and bereavement: developing a national survey of bereaved relatives
Major theme | Sub themes | N | |
|---|---|---|---|
1. Physical care and comfort | 1 | Symptom management | 10 out of 11 focus groups |
2 | Pain management | 11 out of 11 focus groups | |
3 | Personal care and nutrition | 8 out of 11 focus groups | |
4 | Unnecessary medical interventions | 3 out of 11 focus groups | |
5 | Community services and practical resources | 7 out of 11 focus groups | |
6 | Urgent care out of hours | 2 out of 11 focus groups | |
2. Psychosocial care | 7 | Emotional care and support | 11 out of 11 focus groups |
8 | Psychosocial care and support | 10 out of 11 focus groups | |
9 | Financial or legal matters | 9 out of 11 focus groups | |
3. Spiritual and Cultural Care | 10 | Spiritual and religious care and support | 11 out of 11 focus groups |
11 | Cultural care | 2 out of 11 focus groups | |
4. Person centred care and support | 12 | Holistic care and support | 11 out of 11 focus groups |
13 | Person treated with compassion and kindness, dignity and respect, | 10 out of 11 focus groups | |
14 | Confidence in staff skills and knowledge | 4 out of 11 focus groups | |
15 | Continuity of care between care settings | 9 out of 11 focus groups | |
16 | Route of admission | 7 out of 11 focus groups | |
17 | Coordination of care | 2 out of 11 focus groups | |
5. Communication | 18 | Importance of clear and comprehensive communication of information | 11 out of 11 focus groups |
19 | Communication about impending death | 11 out of 11 focus groups | |
20 | Access to palliative care | 2 out of 11 focus groups | |
21 | Care after death | 6 out of 11 focus groups | |
22 | Advance care planning | 9 out of 11 focus groups | |
23 | Preferred place of care /preferred place of death | 9 out of 11 focus groups | |
6. Physical Environment | 24 | Importance of care in a single room compared to multi-occupancy room | 9 out of 11 focus groups |
25 | Facilities for relatives - family rooms | 8 out of 11 focus groups | |
7. Support for relatives | 26 | Support and services for relatives including bereavement support | 10 out of 11 focus groups |
27 | Family presence - being able to visit at any time | 10 out of 11 focus groups | |
28 | Family provision of care and support | 4 out of 11 focus groups |