Table 1 Characteristics of the study sample containing prognostic estimates N (%)
Full prognosis cohort | Deceased | Alive | |
|---|---|---|---|
n = 98,187 | n = 49,940 (50.9%) | n = 48,247 (49.1%) | |
Gender (n = 98,184) | |||
Female | 56,397 (57.4%) | 27,026 (54.1%) | 29,371 (68. 9) |
Male | 41,787 (42.6%) | 22,912 (45.9%) | 18,875 (39.1%) |
Age Group at Record Creation (n = 98,187) | |||
< 60 | 9,472 (19.2%) | 4,177 (8.2%) | 5,295 (11.0%) |
60–69 | 10,556 (10.8%) | 5,375 (10.8%) | 5,181 (10.7%) |
70–79 | 21,336 (21.7%) | 10,315 (20.7%) | 11,021 (22.8%) |
≥ 80 | 56,883 (57.9%) | 30,133 (60.3%) | 26,750 (55.5%) |
Age Group at Death (n = 98,125) | |||
< 60 | 3,966 (8.0%) | 3,966 (8.0%) | - |
60–69 | 5,175 (10.5%) | 5,175 (10.5%) | - |
70–79 | 9,907 (19.9%) | 9,907 (19.9%) | - |
≥ 80 | 30,830 (61.6%) | 30,830 (61.6%) | - |
Diagnosis (n = 98,096) | |||
Cancer | 27,635 (28.1%) | 21,444 (42.9%) | 6,191 (12.8%) |
Dementia & Frailty | 20,475 (20.9%) | 10,549 (21.1%) | 9,926 (20.6%) |
Heart Disease | 14,965 (15.2%) | 5,659 (11.3%) | 9,306 (19.3%) |
Respiratory Disease | 7,926 (8.1%) | 3,086 (6.3%) | 4,840 (10.0%) |
Other | 27,095 (27.7%) | 9,120 (18.4%) | 17,975 (37.3%) |
WHO Performance Status (n = 98,139) | |||
0 (Able to carry out all normal activity without restriction) | 5,168 (5.3%) | 406 (0.8%) | 4,762 (9.9%) |
1 (Restricted in strenuous activity but ambulatory and able to carry out light work) | 7,232 (7.4%) | 1,352 (2.7%) | 5,880 (12.2%) |
2 (Ambulatory and capable of all self-care but unable to carry out any work activities) | 16,036 (16.3%) | 5,054 (10.1%) | 10,982 (22.8%) |
3 (Symptomatic and in a chair or in bed for greater than 50% of the day but not bedridden) | 28,135 (28.7%) | 14,239 (28.5%) | 13,896 (28.8%) |
4 (Completely disabled; cannot carry out any self-care; totally confined to bed or chair) | 41,568 (42.3%) | 28,847 (57.9%) | 12,721 (26.4%) |
Place of death (n = 31,788) | |||
Home | 12,714 (40.0%) | - | |
Care Home | 8,110 (25.5%) | - | |
Hospice | 4,030 (12.7%) | - | |
Hospital | 6,821 (21.5%) | - | |
Other | 113 (0.4%) | - | |
Preferred Place of death – Option 1 (n = 66,694) | |||
Home | 37,132 (53.3%) | 22,105 (55.5%) | 15,027 (50.4%) |
Care Home | 22,542 (32.3%) | 12,904 (32.4%) | 9,638 (32.3%) |
Hospice | 4,870 (7.0%) | 3,456 (8.7%) | 1,414 (4.7%) |
Hospital | 3,573 (5.1%) | 745 (1.9%) | 2,828 (9.5%) |
Other | 1,577 (2.3%) | 650 (1.6%) | 927 (3.1%) |
Preferred Place of death – Option 2 (n = 34,591) | |||
Home | 9,593 (27.7%) | 5,559 (28.3%) | 4,034 (27.0%) |
Care Home | 7,218 (20.9%) | 4,050 (20.6%) | 3,168 (21.2%) |
Hospice | 10,526 (30.4%) | 7,440 (37.8%) | 3,086 (20.7%) |
Hospital | 6,021 (17.4%) | 2,070 (10.5%) | 3,951 (26.5%) |
Other | 1,233 (3.6%) | 541 (2.8%) | 692 (4.6%) |
Preferred place of care (n = 83,645) | |||
Home | 49,658 (59.4%) | 29,298 (64.6%) | 20,360 (53.2%) |
Care Home | 25,064 (30.0%) | 14,048 (31.0%) | 11,016 (28.8%) |
Hospice | 893 (1.1%) | 601 (1.3%) | 292 (0.8%) |
Hospital | 7,164 (8.6%) | 1,134 (2.5%) | 6,030 (15.8%) |
Other | 866 (1.0%) | 295 (0.7%) | 571 (1.5%) |
Presence of DNACPR order (n = 98,187) | |||
Yes | 61,798 (63.0%) | 33,195 (66.5%) | 28,603 (59.3%) |
No | 36,389 (37.0%) | 16,745 (33.5%) | 19,644 (40.7%) |