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Table 1 Basic characteristics of neonates, parents, and conversations

From: Uncertainty and probability in neonatal end-of-life decision-making: analysing real-time conversations between healthcare professionals and families of critically ill newborns

Case

Characteristics of neonates

Characteristics of parents

Characteristics of conversations

Gestation week at birth

Weight at birth (Grams)

Twin

Key Diagnosis

(Other than prematurity)

BAPM Categorisation

Death

(Day of life)

Age mother

Mother tongue

Translator

Nr of consults

Duration

(Min)

1

23

500–1000

No

Pulmonary hypoplasia, severe bronchopulmonary dysplasia

3, 4

*

25–29

Yes

No

1

37

2

25

500–1000

No

lntracerebral haemorrhage lV° bilaterally

4

3

35–39

Yes

No

1

22

3

24

500–1000

Yes

IVH III° bilaterally, very extensive venous infarction bilaterally, left panhemispheric and left frontoparietal

4

11

25–29

Yes

No

1

33

4

24

500–1000

No

IVH IV° right and II° left

4

18

30–34

No

Yes

3

28–64

5

24

500–1000

Yes

Severe IVH III° bilaterally with venous infarction left (frontal to temporal)

4

*

35–39

Yes

No

1

85

6

24

500–1000

No

IVH III° bilaterally, Parenchymatous haemorrhage IV° bilaterally (parietal bilaterally, frontal right), Posthaemorrhagic hydrocephalus, Parenchymatous haemorrhage right cerebellum hemisphere

4

6

30–34

Yes

No

1

35

7

24

< 500

No

Volvulus without malrotation, Differential diagnosis necrotizing enterocolitis Bell’s stage IIIa

4

287

30–34

No

Yes

2

33–62

8

36

1000–2000

No

Congenital central hypoventilation syndrome, Clinical suspicion of Hirschspung’s disease

2

31

35–39

Yes

No

6

18–73

  1. * Discharge home
  2. Abbreviations: IVH Intraventricular haemorrhage, n/a not applicable