Patients | Median and interquartile range T0 | Median and interquartile range T1 | Statistical test—Z Wilcoxon | P-value |
---|---|---|---|---|
Phase 1 (n = 11) | ||||
 Quality of life (MQOL-R) | ||||
  Global (0–10) | 7 (5–9) | 7 (5–9) | -.427 | .669 |
  Physical (0–10) | 5.7 (3.3–6.3) | 5,7 (4–7) | -1.279 | .201 |
  Psychological (0–10) | 6.5 (5.3–8.3) | 5.3 (4.3–8.8) | -.714 | .475 |
  Existential (0–10) | 7.5 (6.5–8.8) | 7 (6.3–7.8) | -.666 | .505 |
  Relational (0–10) | 9.7 (8.3–10) | 8.7 (8.7–9.7) | -1.719 | .086 |
  Total score (0–10) | 7.1 (6.2–8) | 6.4 (5.8–7.2) | -.978 | .328 |
 Quality of relationship (PNRQ) | ||||
  Positive scale (0–48) | 43 (39–47) | 42.8 (38–47) | -.634 | .526 |
  Negative scale (0–48) | 0 (0–1) | 0 (0–2) | -.447 | .655 |
Quality of relationship (CSI-4; 0–21) | 21 (18–21) | 20 (18–21) | -1.414 | .157 |
 Psychological distress (HADS) | ||||
  Depression (0–21) | 7 (6–11) | 6 (4–10) | -.655 | .512 |
  Anxiety (0–21) | 6 (4–11) | 7 (5–10) | -.104 | .917 |
  Total score (0–42) | 14 (9–18) | 15 (8–20) | -.535 | .592 |
Subjective burden (SPBS; 0–50) | 25 (21–32) | 27 (24–32) | -1.179 | .238 |
Phase 2 (n = 12) | ||||
 Grateful relationship (0–5) | 5 (5–5) | 5 (5–5) | .000 | 1.000 |
 Satisfactory relationship (0–5) | 5 (5–5) | 5 (5–5) | -1.000 | .317 |
 Quality of life (0–10) | 7 (4.3–9.5) | 6 (4–10) | -.171 | .865 |
 Grateful feeling (1–5) | 5 (4–5) | 5 (4–5) | -.378 | .705 |
 Depression (0–10) | .5 (0–4.8) | 0 (0–5) | -.816 | .414 |
 Anxiety (0–10) | 3.5 (0–5.75) | 1 (0–6) | -.271 | .786 |
 Subjective burden (0–10) | 6 (0–8) | 3 (0–5) | -.775 | .438 |