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Table 3 Age, context, infant’s status and environment at time of death

From: Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement

 

Withhold/withdraw LST (N = 115)

Maximal care (N = 64)

p

Age (days)

12 (8, 142)

3 (1, 140)

0.02

Context

  

 < 0.001

 Severe brain lesions

63 (55)

0 (0)

 

 Severe congenital malformation

28 (24)

2 (3)

 

 Respiratory failure

0 (0)

20 (31)

 

 Sepsis

0 (0)

13 (20)

 

 NEC, other GI disease

11 (10)

7 (11)

 

 Extreme immaturity

13 (11)

22 (34)

 

Presence with the infant

 Mother

100 (87)

52 (81)

0.31

 Father

83 (72)

45 (70)

0.79

 Both parents

81 (70)

42 (66)

0.51

 Siblings

2 (2)

1 (2)

1.0

 Other family members

15 (13)

9 (14)

1.0

 Absence of family members

5 (4)

7 (11)

0.17

 Death in arms of

  

0.016

  Mother

74 (64)

43 (67)

 

  Father

18 (16)

2 (3)

 

  Family members/caregivers

11 (10)

5 (8)

 

  Nobody

12 (10)

14 (22)

 

Perception of the infant's condition and environment by caregiversa

 Satisfactory pain control

108 (94)

58 (91)

0.61

 Satisfactory PS by relatives

104 (90)

50 (78)

0.04

 Proposal of

  Psychological support

89 (77)

39 (61)

0.03

  Spiritual support

78 (68)

30 (47)

0.01

  1. Values are numbers (%) or medians (Q25, Q75)
  2. Abbreviations: LST Life-sustaining treatments, NEC Necrotizing enterocolitis, GI Gastrointestinal, PS Parental support
  3. aJoint opinion of the physician and nurse present at the time of death, satisfactory corresponds to scores from 4 to 5 on a 5-point scale