Withhold/withdraw LST (N = 115) | Maximal care (N = 64) | p | |
---|---|---|---|
Age (days) | 12 (8, 142) | 3 (1, 140) | 0.02 |
Context | < 0.001 | ||
Severe brain lesions | 63 (55) | 0 (0) | |
Severe congenital malformation | 28 (24) | 2 (3) | |
Respiratory failure | 0 (0) | 20 (31) | |
Sepsis | 0 (0) | 13 (20) | |
NEC, other GI disease | 11 (10) | 7 (11) | |
Extreme immaturity | 13 (11) | 22 (34) | |
Presence with the infant | |||
Mother | 100 (87) | 52 (81) | 0.31 |
Father | 83 (72) | 45 (70) | 0.79 |
Both parents | 81 (70) | 42 (66) | 0.51 |
Siblings | 2 (2) | 1 (2) | 1.0 |
Other family members | 15 (13) | 9 (14) | 1.0 |
Absence of family members | 5 (4) | 7 (11) | 0.17 |
Death in arms of | 0.016 | ||
Mother | 74 (64) | 43 (67) | |
Father | 18 (16) | 2 (3) | |
Family members/caregivers | 11 (10) | 5 (8) | |
Nobody | 12 (10) | 14 (22) | |
Perception of the infant's condition and environment by caregiversa | |||
Satisfactory pain control | 108 (94) | 58 (91) | 0.61 |
Satisfactory PS by relatives | 104 (90) | 50 (78) | 0.04 |
Proposal of | |||
Psychological support | 89 (77) | 39 (61) | 0.03 |
Spiritual support | 78 (68) | 30 (47) | 0.01 |