Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement

Table 4 Data collected during interview with parents 3 months after infant's death

	Withhold/withdraw LST (N = 68)	Maximal care (N = 41)	p
Assessment of family environment
Satisfactory^a
Language expression/understanding	59 (87)	31 (76)	0.14
Communication within the couple	47 (69)	26 (63)	0.54
Support from the relatives	49 (72)	27 (66)	0.49
Vulnerability^a
Social factors	15 (22)	9 (22)	0.99
Family factors	18 (26)	8 (20)	0.41
Individual, mother	19 (28)	8 (20)	0.32
Individual, father	7 (10)	5 (12)	1.0
Parental experience in relation to the loss of the infant^b
Relationship with the team
Feeling of listening, consideration	59 (87)	31 (76)	0.14
Clarity of medical information	64 (94)	32 (78)	0.03
Detailed medical information	63 (93)	31 (76)	0.03
Satisfaction with
Presence and involvement in care	61 (90)	31 (76)	0.049
Infant's pain control	45 (66)	19 (46)	0.04
Support by relatives	60 (88)	28 (68)	0.01
Proposal of psychological support	62 (91)	36 (88)	0.81
Proposal of spiritual support	38 (56)	11 (27)	0.006
Following infant’s death
Persistent appetite disturbance	11 (16)	8 (20)	0.85
Persistent sleep disturbance	22 (32)	16 (39)	0.62
Return to work	57 (84)	31 (76)	0.42
Prospect of future pregnancy	41 (60)	14 (34)	0.01
Feelings^c
Guilt	23 (34)	17 (41)	0.55
Anger	26 (38)	17 (41)	0.74

Values are numbers (%)
^aJoint opinion of the principal investigator and the referent psychologist. “Satisfactory” and “Vulnerability” corresponds to scores from 4 to 5 on a 5-point scale
^bBinary responses to direct questions to parents. Numbers and percentages indicate positive answers
^cDirect and spontaneous expression during the interview

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