Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement

Table 6 Agreement with the decision of withholding/withdrawing life-sustaining treatment and parental anxiety and depression 5 months and 15 months after the infant death

	Explicit	Other^a	p
Parental anxiety^b
5 months
Agreement after ethics debate	19/20 (95)	16/30 (53)	0.005
Agreement 3 months after death	15/21 (71)	20/29 (69)	1
15 months
Agreement after ethics debate	14/18 (78)	13/27 (48)	0.09
Agreement 3 months after death	14/21 (67)	13/24 (54)	0.58
Parental depression^c
5 months
Agreement after ethics debate	11/20 (55)	9/30 (30)	0.14
Agreement 3 months after death	11/21 (52)	9/29 (31)	0.22
15 months
Agreement after ethics debate	8/18 (44)	4/27 (15)	0.06
Agreement 3 months after death	7/21 (33)	5/24 (21)	0.34

Values are numbers (%)
^aInclude tacit agreement, absence of agreement, and impossible/difficult to adjudicate
^bAt least one parental score on the anxiety subscale (HADS-A) of the Hospital Anxiety and Depression Scale (HADS) > the threshold value of 8
^cAt least one parental score on the depression subscale (HADS-D) of the Hospital Anxiety and Depression Scale (HADS) > the threshold value of 8

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