Table 4 Needed improvements in palliative care reported by professionals (n = 317)

Enhancing the expertise of professionals involved in palliative care

52%

Identifying palliative care needs

42%

Improving the quality of palliative care for people with ID and their relatives

33%

Advance care planning

21%

Collaborating with other professionals in palliative care

21%

Planning and organising palliative care

19%

Collaborating with other care organisations specialised in palliative care

17%

Documenting wishes and decisions (and corresponding changes) in the individual care plan

8%

Supporting relatives and involving them in palliative care for their loved one

7%

Involving people with ID and relatives in decision-making

5%

I don’t know

9%

Other*

6%

None of the above

4%