Table 3 Major Themes and Carer Comments from the User Testing Exercise
Theme | Data/Quotation |
|---|---|
Information was comprehensive | ‘I wish I did have this list (Question Prompt List) when my parents were at their end of life stage. As an outsider we don’t know what to expect and what questions to ask.’ Very thorough. Wish I had some of this 10–15 years ago.’ |
Hearing other carer views | ‘It is interesting to read other people’s stories to know that you are not alone.’ |
Limitations of being online | ‘Not everybody has access to a computer or knows how to use a computer.’ ‘I think it’s extremely comprehensive, it could be a little bit overwhelming. It’s easier for people who are computer literate.’ |
Carer pathways were useful | ‘Caring means you have little time to browse; so if you make it clear that these separate stages can be accessed in one more click, it saves hunting.’ ‘Navigation is very simple and fast. It is easy to understand, and it acts as the needed gateway to work through the various specialty areas. As I signaled earlier, the care pathways are key and very sensible.’ |