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Table 3 Overview of 11 primary and secondary data analysis studies

From: Public perceptions of advance care planning (ACP) from an international perspective: a scoping review

Primary and secondary data analysis studies

Date published

Study title

Authors

Country of origin

Design/study population

2015 June 01

Relinquishing or taking control? Community perspectives on barriers and opportunities in advance care planning [22].

McLennan VE, Boddy JH, Daly MG, et al

Australia

Qualitative study, in-depth participant interviews (n = 26)

2015 October 04

What do Canadians think of advanced care planning? Findings from an online opinion poll [26].

Teixeira AA, Hanvey L, Tayler C, et al

Canada

Online opinion poll (n = 1,523)

2019 January 24

Dissonance on perceptions of end-of-life needs between health-care providers and members of the public: Quantitative cross-sectional surveys [27].

Cardona M, Lewis E, Shanmugam S, et al

Australia

Comparative study between views of healthcare workers and older people. (Doctors/ nurses; n = 360, members of the public n = 497)

2019 May 28

Framing advance care planning in Parkinson’s

Disease: Patient and care partner perspectives [28].

Lum H, Jordan SR

Brungardt A et al

USA

Qualitative descriptive study, (n = 60)

2019 December 12

“Whatever happens, happens” challenges of end-of-life communication from the perspective of older adults and family caregivers: A qualitative study [29].

Im J, Mak S, Upshur R, et al

Canada

Qualitative study of older adults with heart failure and their family caregivers, (n = 19)

2020 March 10

Lack of awareness and common misconceptions about palliative care among adults: Insights from a national survey [30].

Flieger SP, Chui K, Koch-Weser S

USA

Secondary data analysis of nationally representative self-reported data (n = 3,504)

2020 May 25

Exploring patient-reported barriers to advance care planning in family practice [31].

Bernard C, Tan A, Slaven M, et al

Canada

Multi-site cross-sectional study (n = 810)

2020 September 03

Associations between the intention to use early palliative care, sources of information, and attitudes toward a good death in Korean adults [32].

Kye SY, Han KT, Choi J, et al

Korea

Stratified nation-wide, cross-sectional study (n = 1,500)

2020 November 19

What is the public opinion of advance care planning within the Punjabi Sikh community? [33]

Landa, AS

UK

Survey, Sikh community (n = 311)

2021 March 19

Lean in, don’t step back: The views and experiences of patients and carers with severe mental illness and incurable physical conditions on palliative and end of life care [34].

Jerwood J, Ward G, Phimister D, et al

UK

Qualitative, semi-structured interviews (n = 8)

2021 May 17

‘It’s almost superstition: If I don’t think about it, it won’t happen’. Public knowledge and attitudes towards advance care planning:

A sequential mixed methods study [35].

McIlfatrick S, Slater P, Bamidele O, et al

UK

A two phase, explanatory, sequential mixed-methods design (n = 1,201)