Table 1 Demographics and raw scores*
| Â | N(%) | |
|---|---|---|
Gender | Â | |
 Female | 103(53) | |
 Male | 90(43) | |
Race & ethnicity | Â | |
 Caucasian | 139(72) | |
 Black or African American | 30(16) | |
 Asian | 13(7) | |
 Other | 10(6) | |
 Hispanic or Latinx | 13(7) | |
Medical Diagnosis | Â | |
 Cancer (advanced/metastatic) | 128(70) | |
 Severe and/or Rare Non-Genetic conditions | 20(11) | |
 Blood Dyscrasias | 17(9) | |
 Severe and/or Rare Genetic conditions | 16(9) | |
 AIDS | 1(1) | |
| Â | Median (IQR) | Range |
NIH-HEALS | Â | Â |
 Total score | 134 (120–145) | 87–172 |
 Connection factor score | 40 (31–46) | 13–50 |
 Reflection & Introspection score | 54 (50–60) | 38–70 |
 Trust & Acceptance score | 41 (36–45) | 20–55 |
CD-RISC-10 | Â | Â |
 Total score | 31 (25–35) | 10–40 |
MAAS | Â | Â |
 Total score | 67 (57–75) | 15–90 |