Table 2 Feedback on the written report from the initial palliative consultation from family caregivers and primary treating specialists

Reasons for high validation of the written report from the initial consultation reported by family caregivers and the treating specialists

Family caregivers

• content of the conversation is maintained

• parental preferences are available for primary care teams for further treatment decisions

• notes serve as an information source for all

• notes are available for future reading

Treating specialists

• specialist gain insight in the topics discussed if they missed the consultation

• official report including parental preferences strengthens the relationship with the PPCT

• useful from the legal point of view, prevention of conflict

Reasons for usefulness of the opportunity for family caregivers to give feedback on the report from the initial consultation reported by family caregivers and treating specialists

• expectations of the family and the PPCT regarding the written report from the consultation is harmonized

• understanding parental preferences is verified before being inserted to the official documentation

• erasing controversial or highly personal information is possible when parents wish to do so

• potential misunderstanding and misinterpretation of parental preferences is minimalized

• supporting the shared-decision process with parents acting as partners in the debate

• gesture of trust