Fig. 1

Process of topic selection

a Topics covered in the CPG for paediatric palliative care 2013 are: anxiety and depression; dyspnoea; haematological symptoms; coughing; skin complaints; nausea and vomiting; neurological symptoms; pain; death rattle; fatigue; decision making; and organisation of care.  b Suggestions for topics identified in the invitational conference and surveys are: delirium; refractory symptoms; psychosocial care; loss and bereavement; advance care planning; practicing communication skills; financing; and complementary care. c Reasons for removal from topic list are: practicing communication skills and financing are outside the scope of this CPG; and, complementary care will be covered in another CPG. d Topics covered in the revised CPG for paediatric palliative care are: anxiety and depression; delirium; dyspnoea; haematological symptoms; coughing; skin complaints; nausea and vomiting; neurological symptoms; pain; death rattle; fatigue; refractory symptoms; advance care planning and shared decision making; organisation of care; psychosocial care; and loss and bereavement.  e Newly added topics are: delirium; refractory symptoms; advance care planning and shared decision making; psychosocial care; and loss and bereavement.  f Topics of which the content will be refined: anxiety and depression; dyspnoea; haematological symptoms; coughing; skin complaints; nausea and vomiting; neurological symptoms; pain; death rattle; fatigue; and organisation of care