Table 2 Outcome measures used by participants
Outcome Domain | Recommended Outcome Measures |
|---|---|
Coping with Grief | - Hogan Grief Reaction Checklist [81] - Grief-specific questionnaires |
Aspects of Caregiver Experience | - Positive Aspects of Caregiving [82] - Caregiver Resilience Scale [83] - Zarit Caregiver Burden [84] - Revised Scale for Caregiver Self-Efficacy [85] - NPI Subscale (Caregiver Distress) [86] |
Quality of Life | - EQ-5D-5 L (Health Related Quality of Life) [87] - Quality of Life questionnaire [88] - Assessment of Quality of Life – 6 Dimension (AqoL-6D) [89] |
Social Support | - Multidimensional Scale of Perceived Social Support (MPSS) [90] |
Physical Outcomes | - The MOS 36-item short-form health survey (SF-36) [91] - The Patient Health Questionnaire (PHQ-9) [92] - Health Economics (analysis of medical costs) |
Psychological Outcomes | - Beck Depression Scale [93] |
Music Therapy Evaluation | - The Impact Areas Questionnaire (IAQ): (A Music Therapy Service Evaluation Tool) [94] - Bespoke Evaluation Process |