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Table 1 Characteristics of children and adolescents participating in the main test (N = 26)

From: Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions

Age in years; M (SD)

9.92 (6.3)

Age groups; n (%)

 

 1–5

7 (26.9)

 6–10

7 (26.9)

 11–15

6 (23.0)

 16–20

4 (15.3)

 21–25

2 (7.6)

Sex; n (%)

 

 Female

11 (42.3)

 Male

15 (57.7)

Born premature; n (%)

 

 Yes

4 (18.2)

Care level; n (%)1

 

 None

1 (3.8)

 1

0 (0)

 2

0 (0)

 3

1 (3.8)

 4

5 (19.2)

 5

19 (73.1)

Can the child communicate verbally?; n (%)

 

 Yes, without restrictions

2 (9.1)

 Yes, with restrictions

3 (13.6)

 No

17 (77.3)

Diagnoses2

 

 ICD-10 code

Definition of ICD 10 code and examples of underlying disease(s)

number (%)

 P91

Other disturbances of cerebral status of newborn

9 (34.6)

 

Hypoxic ischemic encephalopathy, Periventricular leukomalacia

 

 Q87

Other specified congenital malformation syndromes affecting multiple systems

5 (19.2)

 

Microdeletion syndrome 4q13.3–21.3, mosaic trisomy 9

 

 Q04.9

Congenital malformation of brain, unspecified

4 (15.4)

 

Severe psychomotor developmental disorder with bifrontal polymicrogyria and hypomyelination.

 

 E70-E70

Metabolic disorders

3 (11.5)

 

Metachromatic leukodystrophy

 

 Q93.9

Disorder of brain, unspecified

2 (7.7)

 

Epileptic encephalopathy

 

 G71

Primary disorders of muscles

1 (3.8)

 

X-linked recessive muscular dystrophy, Duchenne type

 

 Q89

Other congenital malformations, not elsewhere classified

1 (3.8)

 

Severe global developmental disorder caused by mutation in the ACY1 gene.

 

 G93.1

Anoxic brain damage, not elsewhere classified

1 (3.8)

 

Severe multi-cystic encephalomalacia

 
  1. 1In Germany, the care level indicates the degree to which a person requires care ranging from 1 (slight impairment of independence) to 5 (most severe impairment of independence with special requirements for nursing care)
  2. 2Examples of the represented underlying diseases are indicated in italic font; multiple diagnoses/entries possible