Table 1 Themes, subthemes, and number of quality of care items resulting from the inductive qualitative study which were tested in the modified Delphi expert panel review

1. Professional qualities of healthcare workers

1.1 Responsive and sensitive communication

11

1.2 Competency of healthcare delivery

5

2. Supporting parent-caregivers

2.1 Empowering parent-caregivers

7

2.2 Providing psychosocial support to parents and family

6

2.3 Reducing caregiving stress and burdens

5

3. Collaborative and holistic care

3.1 Shared decision-making

8

3.2 Holistic approach to care for the child

6

4. Efficient healthcare structures and standards

4.1 Accessible medical care

6

4.2 Effective administration and facilities

6

4.3 Coordination and continuity of care

6

Total number of items

66