Table 3 Characteristics of participating parents (n = 42) and children in pre-testing (n = 12) and pilot-testing (n = 30)
Parent characteristics (number, %) | Child characteristics (number, %) | ||
|---|---|---|---|
Men | 14 (33) | Boy | 28 (67) |
Mean age, years (range) | 42.6 (31—52) | Mean age, years (range) | 9.3 (2.2 – 19.5) |
Highest education level | Age range | ||
 Post-secondary | 38 (90) | 0 – 5 (Early Childhood) | 18 (43) |
 Secondary school or Vocational Training | 4 (10) | 6 – 12 (Middle Childhood) | 13 (31) |
Mean number hours spent on caregiving per week (Range) | 93.6 (14—168) | 13 – 17 (Adolescence) | 7 (17) |
Married | 42 (100) | 18 – < 21 (Young Adult) | 4 (10) |
Religion | Â | Category of diagnosed conditionsa | Â |
 Christianity | 8 (19) | Category 1 | 7 (17) |
 Buddhism | 10 (24) | Category 2 | 6 (14) |
 Catholic | 11 (26) | Category 3 | 12 (29) |
 Free thinker | 6 (14) | Category 4 | 17 (40) |
 Taoism | 2 (5) |  |  |
 Islam | 5 (12) |  |  |
Caregiving roles (Answered ‘Yes’) | |||
 Physically provide care to child (e.g., help with day-to-day activities) | 37 (88) |  |  |
 Ensure provision of care (e.g., supervise helper to look after child) | 37 (88) |  |  |
 Make decisions about treatments the child receives | 41 (98) |  |  |
 Pay for the medical and health care expenses | 37 (88) |  |  |
Employment | |||
 Stopped working to take care of child | 9 (21) |  |  |
 Full-time job | 25 (60) |  |  |
 Homemaker | 4 (9.5) |  |  |
 Part-time job | 4 (9.5) |  |  |