Characteristics | n |
|---|
Parents’ age | |
Mothers | 27–53 (median 38) |
Fathers | 32–58 (median 40) |
Parents’ education level | |
Upper secondary school | 11 |
Bachelor’s degree | 8 |
Graduate studies | 5 |
Ill child age (years) | 1–17 (median 5) |
LL/LT categories | |
Category 1 | 3 (cancer) |
Category 2 | 0 |
Category 3 | 8 (genetic) |
Category 4 | 1 (genetic) |
Category 5 | 0 |
- a. Categories of LL/LT conditions: (1) Life-threatening conditions for which curative treatment may be feasible but can fail, (2) Conditions in which premature death is inevitable, (3) Progressive conditions without curative treatment options, (4) Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and the likelihood of premature death, (5) Unborn children who may not live through birth, infants who may survive for a few hours/days, infants with birth anomalies or for whom intensive care has been appropriately applied but developed an incurable disease (1)
