Froggatt K, Payne S, Morbey H, Edwards M, Finne-Soveri H, Gambassi G, et al. Palliative care development in European care homes and nursing homes: application of a typology of implementation. J Am Med Dir Assoc. 2017;18(6):550.e7-550.e14.
Article
Google Scholar
Sleeman KE, de Brito M, Etkind S, Nkhoma K, Guo P, Higginson IJ, et al. The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions. Lancet Glob Health. 2019;7(7):e883–92.
Article
PubMed
PubMed Central
Google Scholar
United Nations, Department of Economic and Social Affairs. World population ageing 2020: Highlights (ST/ESA/SER.A/430). Available from: https:// www.un.org/development/desa/pd/sites/www.un.org.development.desa.pd/files/undesa_pd-2020_world_population_ageing_highlights.pdf. Accessed 2 Nov 2021.
Håkanson C, Öhlén J, Morin L, Cohen J. A population-level study of place of death and associated factors in Sweden. Scand J Caring Sci. 2015;43(7):744–51.
Google Scholar
Smedbäck J, Öhlén J, Årestedt K, Alvariza A, Fürst C-J, Håkanson C. Palliative care during the final week of life of older people in nursing homes: A register-based study. Palliat Support Care. 2017;15(4):417–24.
Article
PubMed
Google Scholar
Statistics Sweden. Death by region, age and year [In Swedish: Döda efter region, ålder och år]. Available from: https://www.scb.se/hitta-statistik/sverige-i-siffror/manniskorna-i-sverige/doda-i-sverige/. Accessed 1 Nov 2021.
Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ. 2005;330(7498):1007–11.
Article
PubMed
PubMed Central
Google Scholar
National Board of Health and Welfare. Health and Social Care for Elderly. Status Report 2020 [In Swedish: Vård och omsorg om äldre. Lägesrapport 2020]. Available from: https:// www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/ovrigt/2020-3-6603.pdf. Accessed 3 Nov 2021.
Morin L, Aubry R, Frova L, MacLeod R, Wilson DM, Loucka M, et al. Estimating the need for palliative care at the population level: a cross-national study in 12 countries. PAlliat Med. 2017;31(6):526–36.
Article
PubMed
Google Scholar
Radbruch L, De Lima L, Knaul F, Wenk R, Ali Z, Bhatnaghar S, et al. Redefining palliative Care—A new consensus-based definition. J Pain Symptom Manage. 2020;60(4):754–64.
Article
PubMed
PubMed Central
Google Scholar
Honinx E, Van Dop N, Smets T, Deliens L, Van Den Noortgate N, Froggatt K, et al. Dying in long-term care facilities in Europe: the PACE epidemiological study of deceased residents in six countries. BMC Public Health. 2019;19(1):1–12.
Article
Google Scholar
Brennan F. ‘To die with dignity’: an update on Palliative Care. Intern Med J. 2017;47(8):865–71.
Article
PubMed
Google Scholar
Billsten J, Fridell M, Holmberg R, Ivarsson A. Organizational Readiness for Change (ORC) test used in the implementation of assessment instruments and treatment methods in a Swedish National study. J Subst Abuse Treat. 2018;84:9–16.
Article
PubMed
Google Scholar
Holt DT, Vardaman JM. Toward a comprehensive understanding of readiness for change: The case for an expanded conceptualization. J Chang Manag. 2013;13(1):9–18.
Article
Google Scholar
Kelly P, Hegarty J, Barry J, Dyer KR, Horgan A. A systematic review of the relationship between staff perceptions of organizational readiness to change and the process of innovation adoption in substance misuse treatment programs. J Subst Abuse Treat. 2017;80:6–25.
Article
PubMed
Google Scholar
Weiner BJ, Amick H, Lee SYD. Conceptualization and measurement of organizational readiness for change: a review of the literature in health services research and other fields. Med Care Res Rev. 2008;65(4):379–436.
Article
PubMed
Google Scholar
Weiner BJ. A theory of organizational readiness for change. Implement Sci. 2009;4(1):67.
Article
PubMed
PubMed Central
Google Scholar
Nilsen P, Wallerstedt B, Behm L, Ahlström G. Towards evidence-based palliative care in nursing homes in Sweden: a qualitative study informed by the organizational readiness to change theory. Implement Sci. 2018;13(1):1–12.
Article
PubMed
PubMed Central
Google Scholar
Armenakis AA, Harris SG. Crafting a change message to create transformational readiness. J Organ Chang Manag. 2002;15(2):169–83.
Article
Google Scholar
Gagnon M-P, Attieh R, Ghandour EK, Legare F, Ouimet M, Estabrooks CA, et al. A systematic review of instruments to assess organizational readiness for knowledge translation in health care. PLoS ONE. 2014;9(12): e114338.
Article
PubMed
PubMed Central
CAS
Google Scholar
Sharma N, Herrnschmidt J, Claes V, Bachnick S, De Geest S, Simon M, et al. Organizational readiness for implementing change in acute care hospitals: an analysis of a cross-sectional, multicentre study. J Adv Nurs. 2018;74(12):2798–808.
Article
PubMed
Google Scholar
Kotter JP. Leading change: Why transformation efforts fail. Boston: Harvard Business Review; 1996.
Åvik Persson H, Ahlström G, Ekwall A. Professionals’ expectations and preparedness to implement knowledge-based palliative care at nursing homes before an educational intervention: A focus group interview study. Int J Environ Res Public Health. 2021;18(17):8977.
Article
PubMed
PubMed Central
Google Scholar
Collingridge Moore D, Payne S, Van den Block L, Ling J, Froggatt K. Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review. Palliat Med. 2020;34(5):558–70.
Article
PubMed
PubMed Central
Google Scholar
Ahlström G, Nilsen P, Benzein E, Behm L, Wallerstedt B, Persson M, et al. Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol. BMC Palliat Care. 2018;17(1):1–11.
Article
Google Scholar
Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–15.
Article
PubMed
Google Scholar
Krueger RA, Casey MA. Focus groups: a practical guide for applied research. 5th ed. Thousands Oaks, CA, USA: Sage Publications; 2015.
Google Scholar
Kitzinger J. Qualitative research: introducing focus groups. BMJ. 1995;311(7000):299–302.
Article
CAS
PubMed
PubMed Central
Google Scholar
National Board of Health and Welfare. Elderly Reform Act [In Swedish: Ädelreformen]. Stockholm, Sweden: National Board of Health and Welfare; 1996.
Google Scholar
Broad JB, Gott M, Kim H, Boyd M, Chen H, Connolly MJ. Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics. Int J Public Health. 2013;58(2):257–67.
Article
PubMed
Google Scholar
Young Y, Kalamaras J, Kelly L, Hornick D, Yucel R. Is aging in place delaying nursing home admission? J Am Med Dir Assoc. 2015;16(10):900.e1-900.e9006.
Article
Google Scholar
The Swedish Social Service Act [In Swedish: Socialtjänstlag]. Stockholm: The Swedish Parliament. Available from: https://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/socialtjanstlag-2001453_sfs-2001-453. Accessed 3 Nov 2021.
National Board of Health and Welfare. The condition and development in health care and dental care: status report 2020 [In Swedish: Tillståndet och utvecklingen inom hälso- och sjukvård och socialtjänst: lägesrapport 2020]. Available from: http://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/ovrigt/2020-3-6667.pdf. Accessed 4 Nov 2021.
The National Board of Health and Welfare. Health and Social Care for Elderly. Status Report 2021 [In Swedish: Vård och omsorg om äldre. Lägesrapport 2021]. Available from: https:// www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/ovrigt/2021-3-7249.pdf. Accessed 5 Nov 2021.
Ahlström G, Benzein E. Themed meetings about palliative care within health care (Additional file 1, The Booklet) In Bökberg C, Behm L, Wallerstedt B & Ahlström G. Evaluation of person-centeredness in nursing homes after a palliative care intervention: pre and post-test experimental design. BMC Palliat Care. 2019;18(1):44.
Karlsen B, Hillestad TM, Dysvik E. Abductive reasoning in nursing: Challenges and possibilities. Nurs Inq. 2021;28(1): e12374.
Article
PubMed
Google Scholar
Eriksson K, Lindström UÅ. Abduction—a way to deeper understanding of the world of caring. Scand J Caring Sci. 1997;11(4):195–8.
Article
CAS
PubMed
Google Scholar
Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.
Article
PubMed
Google Scholar
Edhlund BM, McDougall AG. NVivo 12 essentials. Stallarholmen, Sweden: Form & Kunskap; 2019.
Google Scholar
Agreli HF, Peduzzi M, Bailey C. The relationship between team climate and interprofessional collaboration: Preliminary results of a mixed methods study. J Interprof Care. 2017;31(2):184–6.
Article
PubMed
Google Scholar
Agreli HF, Peduzzi M, Bailey C. Contributions of team climate in the study of interprofessional collaboration: A conceptual analysis. J Interprof Care. 2017;31(6):679–84.
Article
PubMed
Google Scholar
MacInnes J, Gadsby E, Reynolds J, Mateu NC, Lette M, Ristl C, et al. Exploring the team climate of health and social care professionals implementing integrated care for older people in Europe. Int J Integr Care. 2020;20(4):3.
Article
PubMed
PubMed Central
Google Scholar
Hubbard G, Themessl-Huber M. Professional perceptions of joint working in primary care and social care services for older people in Scotland. J Interprof Care. 2005;19(4):371–85.
Article
PubMed
Google Scholar
Berwick DM. Disseminating innovations in health care. JAMA. 2003;289(15):1969–75.
Article
PubMed
Google Scholar
Herscovitch L, Meyer JP. Commitment to organizational change: extension of a three-component model. J Appl Psychol. 2002;87(3):474–87.
Article
PubMed
Google Scholar
Kristin PS. Rethinking Resistance and Recognizing Ambivalence: A Multidimensional View of Attitudes toward an Organizational Change. Acad Manag Rev. 2000;25(4):783–94.
Article
Google Scholar
McKay K, Kuntz JRC, Näswall K. The effect of affective commitment, communication and participation on resistance to change: The role of change readiness. N Z J Psychol. 2013;42(2):29–40.
Google Scholar
Mills WL, Pimentel CB, Snow AL, Allen RS, Wewiorski NJ, Palmer JA, et al. Nursing home staff perceptions of barriers and facilitators to implementing a quality improvement intervention. J Am Med Dir Assoc. 2019;20(7):810–5.
Article
PubMed
Google Scholar
Zhao Y, Liao L, Feng H, Chen H, Ning H. Enablers and barriers to implementing care quality improvement program in nursing homes in China. BMC Geriatr. 2021;21(1):1–10.
Article
CAS
Google Scholar
Cummings GG, Estabrooks CA, Midodzi WK, Wallin L, Hayduk L. Influence of organizational characteristics and context on research utilization. Nurs Res. 2007;56(4):24–39.
Article
Google Scholar
Von Treuer K, Karantzas G, McCabe M, Mellor D, Konis A, Davison TE, et al. Organizational factors associated with readiness for change in residential aged care settings. BMC Health Serv Res. 2018;18(1):1–6.
Google Scholar
Shier V, Khodyakov D, Cohen LW, Zimmerman S, Saliba D. What does the evidence really say about culture change in nursing homes? Gerontologist. 2014;54(Suppl_1):S6–16.
Article
PubMed
Google Scholar
Chisholm L, Zhang NJ, Hyer K, Pradhan R, Unruh L, Lin F-C. Culture change in nursing homes: What is the role of nursing home resources? Inquiry. 2018;55:1–6.
Google Scholar
Hall S, Petkova H, Tsouros AD, Costantini M, Higginson IJ. Palliative care for older people: better practices. Copenhagen: World Health Organization; 2011.
Google Scholar
Brännström M, Hägglund L, Fürst CJ, Boman K. Unequal care for dying patients in Sweden: a comparative registry study of deaths from heart disease and cancer. Eur J Cardiovasc Nurs. 2012;11(4):454–9.
Article
PubMed
Google Scholar
Lindskog M, Tavelin B, Lundström S. Old age as risk indicator for poor end-of-life care quality–a population-based study of cancer deaths from the Swedish register of palliative care. Eur J Cancer. 2015;51(10):1331–9.
Article
PubMed
Google Scholar
Lincoln YS, Guba EG. Naturalistic inquiry. Beverly Hills, CA, USA: Sage Publications; 1985.
Book
Google Scholar
Graneheim UH, Lindgren B-M, Lundman B. Methodological challenges in qualitative content analysis: A discussion paper. Nurse Educ Today. 2017;56:29–34.
Article
PubMed
Google Scholar
World Medical Association. World Medical Association Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects. JAMA. 2013;310(20):2191–4.
Article
CAS
Google Scholar
The Act concerning the Ethical Review of Research Involving Humans [In Swedish: Lag om etikprövning av forskning som avser människor]. Stockholm: The Swedish Parliament. Available from: https:// www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/lag-2003460-om-etikprovning-av-forskning-som_sfs-2003-460. Accessed 6 Nov 2021.
European Data Protection Board. The General Data Protection Regulation (GDPR). Available from: https://edpb.europa.eu/sites/default/files/files/news/endorsement_of_wp29_documents_en_0.pdf. Accessed 7 Nov 2021.