Steliarova-Foucher E, Colombet M, Ries LAG, et al. International incidence of childhood cancer, 2001–10: a population-based registry study. Lancet Oncol. 2017;18(6):719–31. https://doi.org/10.1016/S1470-2045(17)30186-9.
Article
PubMed
PubMed Central
Google Scholar
Magrath I, Steliarova-Foucher E, Epelman S, et al. Paediatric cancer in low-income and middle-income countries. Lancet Oncology. 2013;14(3):e104–16. https://doi.org/10.1016/S1470-2045(13)70008-1.
Article
PubMed
Google Scholar
Ellison LF, Pogany L, Mery LS. Childhood and adolescent cancer survival: A period analysis of data from the Canadian Cancer Registry. Eur J Cancer. 2007;43(13):1967–75. https://doi.org/10.1016/j.ejca.2007.05.014.
Article
PubMed
Google Scholar
Gupta S, Howard SC, Hunger SP, et al. Treating Childhood Cancer in Low- and Middle-Income Countries. In: Gelband H, Jha P, Sankaranarayanan R, et al, editors. Cancer: Disease Control Priorities, Third Edition (Volume 3). Washington (DC): The International Bank for Reconstruction and Development / The World Bank; 2015. Chapter 7. Available from: https://www.ncbi.nlm.nih.gov/books/NBK343626/. https://doi.org/10.1596/978-1-4648-0349-9_ch7.
Gans D, Kominski GF, Roby DH, Diamant AL, Chen X, Lin W, Hohe N. Better outcomes, lower costs: palliative care program reduces stress, costs of care for children with life-threatening conditions. Policy brief (UCLA Center for Health Policy Research), (PB2012-3). 2012:1–8.
Mitchell S, Morris A, Bennett K, Sajid L, Dale J. Specialist paediatric palliative care services: What are the benefits? Arch Dis Child. 2017;102(10):923–9. https://doi.org/10.1136/archdischild-2016-312026.
Article
PubMed
Google Scholar
Weaver MS, Rosenberg AR, Tager J, Wichman CS, Wiener L. A Summary of Pediatric Palliative Care Team Structure and Services as Reported by Centers Caring for Children with Cancer. J Palliat Med. 2018;21(4):452–62. https://doi.org/10.1089/jpm.2017.0405.
Article
PubMed
PubMed Central
Google Scholar
Zernikow B, Szybalski K, Hübner-Möhler B, et al. Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period. Article Palliat Med. 2019;33(3):381–91. https://doi.org/10.1177/0269216318818022.
Article
PubMed
Google Scholar
Balkin EM, Thompson D, Colson KE, Lam CG, Matthay KK. Physician Perspectives on Palliative Care for Children With Neuroblastoma: An International Context. Article Pediatr Blood Cancer. 2016;63(5):872–9. https://doi.org/10.1002/pbc.25900.
Article
PubMed
Google Scholar
Doherty M, Power L, Thabet C. Delivering Hospital-Based Pediatric Palliative Care: The Symptoms, Interventions, and Outcomes for Children With Cancer in Bangladesh. Article JCO Global Oncol. 2020;6:884–91. https://doi.org/10.1200/GO.20.00076.
Article
Google Scholar
Kuhlen M, Schlote A, Borkhardt A, Janen G. Palliative home care of children: An opinion survey of orphaned parents. Article Klinische Padiatrie. 2014;226(3):182–7. https://doi.org/10.1055/s-0034-1371841.
Article
CAS
PubMed
Google Scholar
Lindley LC, Keim-Malpass J. Quality of paediatric hospice care for children with and without multiple complex chronic conditions. Rev Int J Palliat Nurs. 2017;23(5):230–7. https://doi.org/10.12968/ijpn.2017.23.5.230.
Article
Google Scholar
Osenga K, Postier A, Dreyfus J, Foster L, Teeple W, Friedrichsdorf SJ. A Comparison of Circumstances at the End of Life in a Hospital Setting for Children With Palliative Care Involvement Versus Those Without. Article J Pain Symptom Manage. 2016;52(5):673–80. https://doi.org/10.1016/j.jpainsymman.2016.05.024.
Article
PubMed
Google Scholar
Schmidt P, Otto M, Hechler T, Metzing S, Wolfe J, Zernikow B. Did increased availability of pediatric palliative care lead to improved palliative care outcomes in children with cancer? J Palliat Med. 2013;16(9):1034–9.
Article
PubMed
Google Scholar
Ullrich CK, Lehmann L, London WB, et al. End-of-Life Care Patterns Associated with Pediatric Palliative Care among Children Who Underwent Hematopoietic Stem Cell Transplant. Article Biol Blood Marrow Transplant. 2016;22(6):1049–55. https://doi.org/10.1016/j.bbmt.2016.02.012.
Article
PubMed
Google Scholar
Vern-Gross TZ, Lam CG, Graff Z, et al. Patterns of end-of-life care in children with advanced solid tumor malignancies enrolled on a palliative care service. Article J Pain Symptom Manage. 2015;50(3):305–12. https://doi.org/10.1016/j.jpainsymman.2015.03.008.
Article
PubMed
Google Scholar
Zhukovsky DS, Herzog CE, Kaur G, Palmer JL, Bruera E. The impact of palliative care consultation on symptom assessment, communication needs, and palliative interventions in pediatric patients with cancer. Article J Palliat Med. 2009;12(4):343–9. https://doi.org/10.1089/jpm.2008.0152.
Article
PubMed
Google Scholar
Friedrichsdorf SJ, Postier A, Dreyfus J, Osenga K, Sencer S, Wolfe J. Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer. Article J Palliat Med. 2015;18(2):143–50. https://doi.org/10.1089/jpm.2014.0285.
Article
PubMed
Google Scholar
Hendricks-Ferguson VL, Haase JE. Parent perspectives of receiving early information about palliative and end-of-life care options from their child’s pediatric providers. Rev Cancer Nurs. 2019;42(4):E22–30. https://doi.org/10.1097/NCC.0000000000000589.
Article
Google Scholar
Niswander LM, Cromwell P, Chirico J, Gupton A, Korones DN. End-of-life care for children enrolled in a community-based pediatric palliative care program. Article J Palliat Med. 2014;17(5):589–91. https://doi.org/10.1089/jpm.2013.0576.
Article
PubMed
Google Scholar
Plaza Fornieles M, García-Marcos Barbero P, GaleraMiñarro AM, et al. Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents. An Pediatr (Barc). 2020;93(1):4–15. https://doi.org/10.1016/j.anpedi.2019.07.001 Eficacia del Equipo de Cuidados Paliativos Pediátricos de Murcia según la experiencia de los padres.
Article
Google Scholar
Ekberg S, Danby S, Herbert A, Bradford NK, Yates P. Affording opportunities to discuss deterioration in paediatric palliative care consultations: a conversation analytic study. Article BMJ Support Palliat Care. 2020;10(2):e13. https://doi.org/10.1136/bmjspcare-2016-001130.
Article
PubMed
Google Scholar
Ekberg S, Danby S, Rendle-Short J, Herbert A, Bradford NK, Yates P. Discussing death: Making end of life implicit or explicit in paediatric palliative care consultations. Patient Educ Couns. 2019;102(2):198–206.
Article
PubMed
Google Scholar
Kassam A, Skiadaresis J, Alexander S, Wolfe J. Differences in end-of-life communication for children with advanced cancer who were referred to a palliative care team. Article Pediatric Blood and Cancer. 2015;62(8):1409–13. https://doi.org/10.1002/pbc.25530.
Article
PubMed
Google Scholar
Mesukko J, Turale S, Jintrawet U, Niyomkar S. Palliative care guidelines for physicians and nurses caring for children and their families in the pediatric intensive care units: A participatory action research study. Article Pacific Rim Int J NursRes. 2020;24(2):202–18.
Google Scholar
Seddighzadeh RP, Lawrence K, Hamby T, Hoeft A. Influence of palliative care on medical treatment of pediatric patients with complex chronic diseases at cook children’s medical center. Article J Palliat Med. 2018;21(11):1617–20. https://doi.org/10.1089/jpm.2018.0079.
Article
PubMed
Google Scholar
Charlebois J, Cyr C. Quality indicators for paediatric palliative care. Article Paediatrics and Child Health (Canada). 2015;20(3):145–7. https://doi.org/10.1093/pch/20.3.145.
Article
Google Scholar
Chong PH, De Castro Molina JA, Teo K, Tan WS. Paediatric palliative care improves patient outcomes and reduces healthcare costs: Evaluation of a home-based program. Article BMC Palliative Care. 2018;17(1):11. https://doi.org/10.1186/s12904-017-0267-z.
Article
CAS
PubMed
Google Scholar
Fraser LK, Van Laar M, Miller M, et al. Does referral to specialist paediatric palliative care services reduce hospital admissions in oncology patients at the end of life. Article Br J Cancer. 2013;108(6):1273–9. https://doi.org/10.1038/bjc.2013.89.
Article
CAS
PubMed
Google Scholar
Keele L, Keenan HT, Sheetz J, Bratton SL. Differences in characteristics of dying children who receive and do not receive palliative care. Article Pediatrics. 2013;132(1):72–8. https://doi.org/10.1542/peds.2013-0470.
Article
PubMed
Google Scholar
Kim CH, Song IG, Kim MS, Lee JY, Lim NG, Shin HY. Healthcare utilization among children and young people with life-limiting conditions: Exploring palliative care needs using National Health Insurance claims data. Article Scientific Reports. 2020;10(1):2692. https://doi.org/10.1038/s41598-020-59499-x.
Article
CAS
PubMed
Google Scholar
Taylor J, Booth A, Beresford B, Phillips B, Wright K, Fraser L. Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review. Rev Palliat Med. 2020;34(6):731–75. https://doi.org/10.1177/0269216320908490.
Article
Google Scholar
Clark D, Centeno C, Clelland D, et al. How are palliative care services developing worldwide to address the unmet need for care? Second ed. Global Atlas of Palliative Care. Worldwide Hospice Palliative Care Alliance; 2020. Available from https://cdn.who.int/media/docs/default-source/integrated-health-services-(ihs)/csy/palliative-care/whpca_global_atlas_p5_digital_final.pdf?sfvrsn=1b54423a_3.
Downing J, Boucher S, Daniels A, Nkosi B. Paediatric Palliative Care in Resource-Poor Countries. Children (Basel). 2018;5(2):27. https://doi.org/10.3390/children5020027.
Article
PubMed
Google Scholar
Arias-Casais N, Garralda E, Pons JJ, et al. Mapping Pediatric Palliative Care Development in the WHO-European Region: Children Living in Low-to-Middle-Income Countries Are Less Likely to Access It. Article J Pain Symptom Manage. 2020;60(4):746–53. https://doi.org/10.1016/j.jpainsymman.2020.04.028.
Article
PubMed
Google Scholar
Fraser LK, Miller M, McKinney PA, Parslow RC, Feltbower RG. Referral to a specialist paediatric palliative care service in oncology patients. Pediatr Blood Cancer. 2011;56(4):677–80. https://doi.org/10.1002/pbc.22667.
Article
PubMed
Google Scholar
Johnston DL, Vadeboncoeur C. Palliative care consultation in pediatric oncology. Support Care Cancer. 2012;20(4):799–803. https://doi.org/10.1007/s00520-011-1152-6.
Article
PubMed
Google Scholar
Levine DR, Johnson LM, Snyder A, et al. Integrating palliative care in pediatric oncology: Evidence for an evolving paradigm for comprehensive cancer care. Article JNCCN J Natl Compr Canc Netw. 2016;14(6):741–8. https://doi.org/10.6004/jnccn.2016.0076.
Article
PubMed
Google Scholar
Menon BS, Mohamed M, Juraida E, Ibrahim H. Pediatric cancer deaths: curative or palliative? J Palliat Med. 2008;11(10):1301–3. https://doi.org/10.1089/jpm.2008.0167.
Article
PubMed
Google Scholar
Tzuh Tang S, Hung YN, Liu TW, et al. Pediatric end-of-life care for Taiwanese children who died as a result of cancer from 2001 through 2006. J Clin Oncol. 2011;29(7):890–4. https://doi.org/10.1200/jco.2010.32.5639.
Article
PubMed
Google Scholar
Bradshaw G, Hinds PS, Lensing S, Gattuso JS, Razzouk BI. Cancer-related deaths in children and adolescents. J Palliat Med. 2005;8(1):86–95. https://doi.org/10.1089/jpm.2005.8.86.
Article
PubMed
Google Scholar
Howell DA, Shellens R, Roman E, Garry AC, Patmore R, Howard MR. Haematological malignancy: are patients appropriately referred for specialist palliative and hospice care? A systematic review and meta-analysis of published data. Palliat Med. 2011;25(6):630–41. https://doi.org/10.1177/0269216310391692.
Article
PubMed
Google Scholar
Jalmsell L, Kreicbergs U, Onelöv E, Steineck G, Henter J-I. Symptoms affecting children with malignancies during the last month of life: a nationwide follow-up. Pediatrics. 2006;117(4):1314–20.
Article
PubMed
Google Scholar
Rost M, Acheson E, Kühne T, et al. Palliative care in Swiss pediatric oncology settings: a retrospective analysis of medical records. Article Supportive Care in Cancer. 2018;26(8):2707–15. https://doi.org/10.1007/s00520-018-4100-x.
Article
PubMed
Google Scholar
Vallero SG, Lijoi S, Bertin D, et al. End-of-life care in pediatric neuro-oncology. Pediatr Blood Cancer. 2014;61(11):2004–11. https://doi.org/10.1002/pbc.25160.
Article
PubMed
Google Scholar
Wright B, Forbes K. Haematologists’ perceptions of palliative care and specialist palliative care referral: a qualitative study. BMJ Support Palliat Care. 2017;7(1):39–45. https://doi.org/10.1136/bmjspcare-2014-000689.
Article
PubMed
Google Scholar
Fowler K, Poehling K, Billheimer D, et al. Hospice referral practices for children with cancer: A survey of pediatric oncologists. Article J Clin Oncol. 2006;24(7):1099–104. https://doi.org/10.1200/JCO.2005.02.6591.
Article
PubMed
Google Scholar
Dalberg T, McNinch NL, Friebert S. Perceptions of barriers and facilitators to early integration of pediatric palliative care: A national survey of pediatric oncology providers. Pediatr Blood Cancer. 2018;65(6):e26996. https://doi.org/10.1002/pbc.26996.
Article
PubMed
Google Scholar
Kars MC, van Thiel GJ, van der Graaf R, Moors M, de Graeff A, van Delden JJ. A systematic review of reasons for gatekeeping in palliative care research. Palliat Med. 2016;30(6):533–48. https://doi.org/10.1177/0269216315616759.
Article
PubMed
Google Scholar
McGorty EK, Bornstein BH. Barriers to physicians’ decisions to discuss hospice: insights gained from the United States hospice model. J Eval Clin Pract. 2003;9(3):363–72. https://doi.org/10.1046/j.1365-2753.2003.00406.x.
Article
PubMed
Google Scholar
Danieli A, Woodhams C. Emancipatory research methodology and disability: A critique. Int J Soc Res Methodol. 2005;8(4):281–96.
Article
Google Scholar
Egbo B. Emergent paradigm: Critical realism and transformative research in educational administration. McGill Journal of Education/Revue des sciences de l'éducation de McGill. 2005;40(2). Available from https://mje.mcgill.ca/article/download/568/457/0.
Nyirő J, Zörgő S, Enikő F, Hegedűs K, Hauser P. The timing and circumstances of the implementation of pediatric palliative care in Hungarian pediatric oncology. Eur J Pediatr. 2018;177(8):1173–9. https://doi.org/10.1007/s00431-018-3170-6.
Article
CAS
PubMed
Google Scholar
Wentlandt K, Krzyzanowska MK, Swami N, et al. Referral practices of pediatric oncologists to specialized palliative care. Support Care Cancer. 2014;22(9):2315–22. https://doi.org/10.1007/s00520-014-2203-6.
Article
PubMed
Google Scholar
Patton MQ. ampling, qualitative (purposive). The Blackwell encyclopedia of sociology. 2007.
Google Scholar
Braun V, Clarke V, Hayfield N, Terry G. Thematic Analysis. In: Liamputtong, P, Ed., Handbook of Research Methods in Health Social Sciences. Singapore: Springer Singapore; 2018. p. 843–860. http://link.springer.com/10.1007/978-981-10-5251-4_103. https://doi.org/10.1007/978-981-10-5251-4_103.
O’Reilly M, Parker N. ‘Unsatisfactory Saturation’: a critical exploration of the notion of saturated sample sizes in qualitative research. Qual Res. 2012;13(2):190–7. https://doi.org/10.1177/1468794112446106.
Article
Google Scholar
Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exerc Health. 2021;13(2):201–16. https://doi.org/10.1080/2159676X.2019.1704846.
Article
Google Scholar
Salins N, Ghoshal A, Hughes S, Preston N. How views of oncologists and haematologists impacts palliative care referral: a systematic review. BMC Palliat Care. 2020;19(1):175. https://doi.org/10.1186/s12904-020-00671-5.
Article
PubMed
PubMed Central
Google Scholar
Pawson R. Theorizing the interview. Br J Sociol. 1996;47(2):295–314.
Article
Google Scholar
Bhaskar R. A realist theory of science. 1978.
Google Scholar
Danermark B, Ekström M, Karlsson JC. Explaining Society: Critical Realism in the Social Sciences (2nd ed.). Routledge; 2019. https://doi.org/10.4324/9781351017831.
Smith C, Elger T. Critical Realism and Interviewing Subjects. In Edwards P, O’Mahoney J, Vincent S, editors. Studying Organizations Using Critical Realism: A Practical Guide (pp. 109-131). Oxford University Press; 2014.
Pessoa A, Harper E, Santos IS, Gracino MCDS. Using Reflexive Interviewing to Foster Deep Understanding of Research Participants’ Perspectives. Int J Qual Methods. 2019;18:1–9.
Article
Google Scholar
Dodgson JE. Reflexivity in Qualitative Research. J Hum Lact. 2019;35(2):220–2. https://doi.org/10.1177/0890334419830990.
Article
PubMed
Google Scholar
McCabe JL, Holmes D. Reflexivity, critical qualitative research and emancipation: a Foucauldian perspective. J Adv Nurs. 2009;65(7):1518–26. https://doi.org/10.1111/j.1365-2648.2009.04978.x.
Article
PubMed
Google Scholar
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. https://doi.org/10.1191/1478088706qp063oa.
Article
Google Scholar
Bandura A. Self-Efficacy: The Exercise of Control. 1997.
Google Scholar
Kaye E, Friebert S, Baker J. Early Integration of Palliative Care for Children with High Risk Cancer and Their Families. Pediatr Blood Cancer. 2016;63(4):593–7.
Article
PubMed
Google Scholar
Brown CR, Hsu AT, Kendall C, et al. How are physicians delivering palliative care? A population-based retrospective cohort study describing the mix of generalist and specialist palliative care models in the last year of life. Palliat Med. 2018;32(8):1334–43. https://doi.org/10.1177/0269216318780223.
Article
PubMed
PubMed Central
Google Scholar
Quill TE, Abernethy AP. Generalist plus specialist palliative care–creating a more sustainable model. N Engl J Med. 2013;368(13):1173–5. https://doi.org/10.1056/NEJMp1215620.
Article
CAS
PubMed
Google Scholar
Firn J, Preston N, Walshe C. What are the views of hospital-based generalist palliative care professionals on what facilitates or hinders collaboration with in-patient specialist palliative care teams? A systematically constructed narrative synthesis. Palliat Med. 2016;30(3):240–56. https://doi.org/10.1177/0269216315615483.
Article
PubMed
Google Scholar
Bergenholtz H, Holge-Hazelton B, Jarlbaek L. Organization and evaluation of generalist palliative care in a Danish hospital. BMC Palliat Care. 2015;14:23. https://doi.org/10.1186/s12904-015-0022-2.
Article
PubMed
PubMed Central
Google Scholar
Donovan LA, Slater PJ, Baggio SJ, McLarty AM, Herbert AR. Perspectives Of Health Professionals And Educators On The Outcomes Of A National Education Project In Pediatric Palliative Care: The Quality Of Care Collaborative Australia. Adv Med Educ Pract. 2019;10:949–58. https://doi.org/10.2147/amep.S219721.
Article
PubMed
PubMed Central
Google Scholar
Lambert M, Shimokawa K. Collecting client feedback. Psychotherapy. 2011;48(1):72–9.
Article
PubMed
Google Scholar
Stajduhar K, Sawatzky R, Robin Cohen S, et al. Bereaved family members’ perceptions of the quality of end-of-life care across four types of inpatient care settings. BMC Palliat Care. 2017;16(1):59. https://doi.org/10.1186/s12904-017-0237-5.
Article
PubMed
PubMed Central
Google Scholar
Yu J, Song IG, Kim CH, Moon YJ, Shin HY, Kim MS. Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea. J Palliat Med. 2020;23(3):346–52. https://doi.org/10.1089/jpm.2018.0584.
Article
PubMed
Google Scholar
McIlfatrick S, Slater P, Beck E, et al. Examining public knowledge, attitudes and perceptions towards palliative care: a mixed method sequential study. BMC Palliat Care. 2021;20(1):44–44. https://doi.org/10.1186/s12904-021-00730-5.
Article
PubMed
PubMed Central
Google Scholar
Ehrlich BS, Movsisyan N, Batmunkh T, et al. Barriers to the early integration of palliative care in pediatric oncology in 11 Eurasian countries. Cancer. 2020;126(22):4984–93. https://doi.org/10.1002/cncr.33151.
Article
PubMed
Google Scholar
Daniel S, Varghese AM. Comprehensive Cancer Care: The Need of the Hour. J Assoc Physicians India. 2019;67:74.
PubMed
Google Scholar
Cuviello A, Raisanen JC, Donohue PK, Wiener L, Boss RD. Initiating Palliative Care Referrals in Pediatric Oncology. Article J Pain Symptom Manage. 2021;61(1):81–891. https://doi.org/10.1016/j.jpainsymman.2020.07.008.
Article
PubMed
Google Scholar
Kaye EC, Jerkins J, Gushue CA, et al. Predictors of Late Palliative Care Referral in Children With Cancer. J Pain Symptom Manage. 2018;55(6):1550–6. https://doi.org/10.1016/j.jpainsymman.2018.01.021.
Article
PubMed
PubMed Central
Google Scholar
DesantoMadeya S, McDermott D, Zerillo JA, Weinstein NJ, Buss M. Developing a model for embedded palliative care in a cancer clinic. BMJ Support Palliat Care. 2017;7:247–50.
PubMed
Google Scholar
Kaye EC, Snaman JM, Baker JN. Pediatric Palliative Oncology: Bridging Silos of Care Through an Embedded Model. J Clin Oncol. 2017;35(24):2740–4. https://doi.org/10.1200/jco.2017.73.1356.
Article
PubMed
Google Scholar
Palat G, Stenlander C, Jacob J, et al. Specialized palliative care and the quality of life for hospitalized cancer patients at a low-resource hospital in India. Article Indian J Palliat Care. 2018;24(3):289–99. https://doi.org/10.4103/IJPC.IJPC_95_18.
Article
PubMed
Google Scholar
Levine DR, Mandrell BN, Sykes A, et al. Patients’ and Parents’ Needs, Attitudes, and Perceptions About Early Palliative Care Integration in Pediatric Oncology. JAMA Oncol. 2017;3(9):1214–20. https://doi.org/10.1001/jamaoncol.2017.0368.
Article
PubMed
PubMed Central
Google Scholar
Liberman D, Song E, Radbill L, Pham P, Derrington S. Early introduction of palliative care and advanced care planning for children with complex chronic medical conditions: a pilot study. Child Care Health Dev. 2016;42(3):439–49.
Article
CAS
PubMed
Google Scholar
Mahmood LA, Casey D, Dolan JG, Dozier AM, Korones DN. Feasibility of Early Palliative Care Consultation for Children With High-Risk Malignancies. Pediatr Blood Cancer. 2016;63(8):1419–22. https://doi.org/10.1002/pbc.26024.
Article
PubMed
Google Scholar
Rapoport A, Beaune L, Weingarten K, Rugg M, Newman CL. Living Life to the Fullest: Early Integration of Palliative Care into the Lives of Children with Chronic Complex Conditions. Curr Pediatr Rev. 2012;8:152–65.
Article
Google Scholar
Rost M. Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study. J Pediatr Oncol Nurs. 2020;37(1):35–45. https://doi.org/10.1177/1043454219871082.
Article
PubMed
Google Scholar
Green SB, Markaki A. Interprofessional palliative care education for pediatric oncology clinicians: an evidence-based practice review. BMC Res Notes. 2018;11(1):797. https://doi.org/10.1186/s13104-018-3905-5.
Article
PubMed
PubMed Central
Google Scholar
McDonald Hugh P, (ed.). Radical Axiology: A First Philosophy of Values. Radical Axiology: Brill Book Archive Part 1, ISBN: 9789004472495 Volume 150 of Value inquiry book series, ISSN 0929-8436. Rodopi; 2004.
Sayer A. Method in Social Science: Revised 2nd Edition (2nd ed.). Routledge; 2010. https://doi.org/10.4324/9780203850374.
Schiller CJ. Critical realism in nursing: an emerging approach. Nurs Philos. 2016;17(2):88–102. https://doi.org/10.1111/nup.12107.
Article
PubMed
Google Scholar
Bhaskar R, Collier A, Lawson T, Norrie A. Critical realism. 1998.
Google Scholar
Crosby DA. Two perspectives on metaphysical perspectivism: Nietzsche and Whitehead. (Friedrich Nietzsche and Alfred North Whitehead ). The Pluralist. 2007;2(3):57.
Google Scholar
Owen D. Nietzsche, politics, and modernity : a critique of liberal reason. Sage Publications; 1995. Series: Philosophy & social criticism (London, England).
Collier A. Critical realism: an introduction to Roy Bhaskar’s philosophy. 1994.
Google Scholar
Snaman J, McCarthy S, Wiener L, Wolfe J. Pediatric Palliative Care in Oncology. J Clin Oncol. 2020;38(9):954–62. https://doi.org/10.1200/JCO.18.02331.
Article
PubMed
PubMed Central
Google Scholar
Cruickshank J. Critical Realism and Critical Philosophy: On the Usefulness of Philosophical Problems. J Critical Realism. 2002;1(1):49–66. https://doi.org/10.1558/jocr.v1i1.49.
Article
Google Scholar
Patel A, Deo S, Bhatnagar S. A Survey of Medical Professionals in an Apex Tertiary Care Hospital to Assess Awareness, Interest, Practices, and Knowledge in Palliative Care: A Descriptive Cross-sectional Study. Indian J Palliat Care Apr-Jun. 2019;25(2):172–80. https://doi.org/10.4103/ijpc.Ijpc_191_18.
Article
Google Scholar
Rao P. Addressing a Long-felt Need: Introducing Palliative Care for MBBS Students in the New Competency-Based Medical Education Curriculum. Indian J Palliat Care Jul-Sep. 2019;25(3):359–60. https://doi.org/10.4103/ijpc.Ijpc_108_19.
Article
Google Scholar
Brock KE, Allen KE, Falk E, et al. Association of a pediatric palliative oncology clinic on palliative care access, timing and location of care for children with cancer. Article Supportive Care in Cancer. 2021;29(4):1849–57. https://doi.org/10.1007/s00520-020-05671-y.
Article
PubMed
Google Scholar
Falk EE, Allen KE, DeGroote NP, Wasilewski-Masker K, Brock KE. Feasibility, Acceptability, and Education of Pediatric Oncology Providers Before and After an Embedded Pediatric Palliative Oncology Clinic. JCO Oncol Pract. 2021;17(6):e714–29. https://doi.org/10.1200/op.20.00881.
Article
PubMed
Google Scholar
Farooki S, Olaiya O, Tarbell L, et al. A quality improvement project to increase palliative care team involvement in pediatric oncology patients. Article Pediatric Blood Cancer. 2021;68(2):e28804. https://doi.org/10.1002/pbc.28804.
Article
PubMed
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