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  1. There is clear evidence that the full range of services required to support people dying at home are far from being implemented, either in England or elsewhere. No studies to date have attempted to identify th...

    Authors: Merryn Gott, Clare Gardiner, Christine Ingleton, Mark Cobb, Bill Noble, Michael I Bennett and Jane Seymour
    Citation: BMC Palliative Care 2013 12:9
  2. Much progress has been made in the provision of palliative care across sub-Saharan Africa, however much still remains to be done, particularly in the area of children’s palliative care (CPC). The Beacon Centre...

    Authors: Julia D Downing, Joan Marston, Casey Selwyn and Laura Ross-Gakava
    Citation: BMC Palliative Care 2013 12:8
  3. Home-based models of hospice and palliative care are promoted with the argument that most people prefer to die at home. We examined the heterogeneity in preferences for home death and explored, for the first t...

    Authors: Barbara Gomes, Natalia Calanzani, Marjolein Gysels, Sue Hall and Irene J Higginson
    Citation: BMC Palliative Care 2013 12:7
  4. In recent years, there have been several studies, using a wide variety of methods, aimed at developing quality indicators for palliative care. In this Quality Indicators for Palliative Care study (Q-PAC study)...

    Authors: Kathleen Leemans, Joachim Cohen, Anneke L Francke, Robert Vander Stichele, Susanne JJ Claessen, Lieve Van den Block and Luc Deliens
    Citation: BMC Palliative Care 2013 12:6
  5. The United Kingdom has led the world in the development of children’s palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treat...

    Authors: Jane Noyes, Richard P Hastings, Mary Lewis, Richard Hain, Virginia Bennett, Lucie Hobson and Llinos Haf Spencer
    Citation: BMC Palliative Care 2013 12:5
  6. Over the last decade technology has rapidly changed the ability to provide home telehealth services. At the same time, pediatric palliative care has developed as a small, but distinct speciality. Understanding...

    Authors: Natalie Bradford, Nigel R Armfield, Jeanine Young and Anthony C Smith
    Citation: BMC Palliative Care 2013 12:4
  7. SAIATU is a program of specially trained in-home social assistance and companionship which, since February 2011, has provided support to end-of-life patients, enabling the delivery of better clinical care by h...

    Authors: Emilio Herrera Molina, Roberto Nuño-Solinis, Gorka Espiau Idioaga, Silvia Librada Flores, Naomi Hasson and Juan F Orueta Medía
    Citation: BMC Palliative Care 2013 12:3
  8. Levomepromazine is an antipsychotic drug that is used clinically for a variety of distressing symptoms in palliative and end-of-life care. We undertook a systematic review based on the question “What is the pu...

    Authors: Isabel Dietz, Andrea Schmitz, Ingrid Lampey and Christian Schulz
    Citation: BMC Palliative Care 2013 12:2
  9. Limited decision-making capacity (DMC) of older people affects their abilities to communicate about their preferences regarding end-of-life care. In an advance directive (AD) people can write down preferences ...

    Authors: Pam J Kaspers, Bregje D Onwuteaka-Philipsen, Dorly JH Deeg and H Roeline W Pasman
    Citation: BMC Palliative Care 2013 12:1
  10. Hypoventilation due to respiratory insufficiency is the most common cause of death in amyotrophic lateral sclerosis (ALS) and non-invasive ventilation (NIV) can be used as a palliative treatment. The current g...

    Authors: Waltteri Siirala, Tarja Saaresranta, Arno Vuori, Sanna Salanterä, Klaus T Olkkola and Riku Aantaa
    Citation: BMC Palliative Care 2012 11:26
  11. The “Patients’ Rights and End of Life Care” Act came into force in France in 2005. It allows withholding/withdrawal of life-support treatment, and intensified use of medications that may hasten death through a...

    Authors: Sophie Pennec, Alain Monnier, Silvia Pontone and Régis Aubry
    Citation: BMC Palliative Care 2012 11:25
  12. Older patients often experience sub-standard communication in the palliative phase of illness. Due to the importance of good communication in patient-centred end-of-life care, it is essential to understand the...

    Authors: Natalie Evans, H Roeline W Pasman, Sheila A Payne, Jane Seymour, Sabine Pleschberger, Reginald Deschepper and Bregje D Onwuteaka-Philipsen
    Citation: BMC Palliative Care 2012 11:24
  13. Recent end of life care policy prioritises patient choice over place of care and in particular promotes dying at home. This policy is predicated on the assumption that there are family carers able and willing ...

    Authors: Sheila Payne, Sarah Brearley, Christine Milligan, David Seamark, Carol Thomas, Xu Wang, Susan Blake and Mary Turner
    Citation: BMC Palliative Care 2012 11:23
  14. Palliative care should be integrated early into the care trajectories of people with life threatening illness such as stroke. However published guidance focuses primarily on the end of life, and there is a gap...

    Authors: Christopher R Burton and Sheila Payne
    Citation: BMC Palliative Care 2012 11:22
  15. Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment a...

    Authors: Franziska Kühne, Thomas Krattenmacher, Corinna Bergelt, Johanna C Ernst, Hans-Henning Flechtner, Daniel Führer, Wolfgang Herzog, Kai v Klitzing, Georg Romer and Birgit Möller
    Citation: BMC Palliative Care 2012 11:21
  16. In patients with advanced, incurable cancer, anticancer treatment may be used to alleviate cancer-related symptoms, but monitoring of them in daily practice is rarely done. We aim to test the effectiveness of ...

    Authors: David Blum, Dieter Koeberle, Karin Ribi, Shu-Fang Hsu Schmitz, Urs Utiger, Dirk Klingbiel and Florian Strasser
    Citation: BMC Palliative Care 2012 11:19
  17. Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in t...

    Authors: Brenda Bentley, Samar M Aoun, Moira O’Connor, Lauren J Breen and Harvey Max Chochinov
    Citation: BMC Palliative Care 2012 11:18
  18. Our aim was to obtain a clearer picture of the relevant care experiences and care perceptions of incurably ill Turkish and Moroccan patients, their relatives and professional care providers, as well as of comm...

    Authors: Fuusje M de Graaff, Patriek Mistiaen, Walter LJM Devillé and Anneke L Francke
    Citation: BMC Palliative Care 2012 11:17
  19. The aim of this study was to determine factors associated with the severity of cancer related fatigue (CRF) and predictors of improvement of CRF at the first follow-up visit in patients with advanced cancer re...

    Authors: Sriram Yennu, Diana L Urbauer and Eduardo Bruera
    Citation: BMC Palliative Care 2012 11:16
  20. This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients’ preferences for place of care (and death) were facilitated and docum...

    Authors: Kathryn Almack, Karen Cox, Nima Moghaddam, Kristian Pollock and Jane Seymour
    Citation: BMC Palliative Care 2012 11:15
  21. Homeless populations have complex and diverse end-of-life care needs. However, they typically die outside of the end-of-life care system. To date, few studies have explored barriers to the end-of-life care sys...

    Authors: Ryan McNeil, Manal Guirguis-Younger and Laura B Dilley
    Citation: BMC Palliative Care 2012 11:14
  22. To maintain patients’ quality of life is one of the major goals in palliative home care provided by general practitioners (GPs). GPs need adequate training to care for palliative patients. The paper seeks to e...

    Authors: Katja Hermann, Peter Engeser, Joachim Szecsenyi and Antje Miksch
    Citation: BMC Palliative Care 2012 11:13
  23. Unbearable suffering most frequently is reported in end-of-life cancer patients in primary care. However, research seldom addresses unbearable suffering. The aim of this study was to comprehensively investigat...

    Authors: Cees DM Ruijs, Ad JFM Kerkhof, Gerrit van der Wal and Bregje D Onwuteaka-Philipsen
    Citation: BMC Palliative Care 2012 11:12
  24. Patients in sub-Saharan Africa commonly experience pain, which often is un-assessed and undertreated. One hindrance to routine pain assessment in these settings is the lack of a single-item pain rating scale v...

    Authors: Kristin TL Huang, Claudio Owino, Rachel C Vreeman, Mildred Hagembe, Festus Njuguna, R Matthew Strother and Gregory P Gramelspacher
    Citation: BMC Palliative Care 2012 11:5
  25. Medicine has long acknowledged the role of chaplains in healthcare, but there is little research on the relationship between chaplaincy care and health outcomes. The present study examines the association betw...

    Authors: Kevin J Flannelly, Linda L Emanuel, George F Handzo, Kathleen Galek, Nava R Silton and Melissa Carlson
    Citation: BMC Palliative Care 2012 11:10
  26. We describe the development of a new training programme on GP-patient communication in palliative care, and the applicability to GPs and GP Trainees. This ‘ACA training programme’ focuses on  A  vailability of th...

    Authors: Willemjan Slort, Annette H Blankenstein, Bernardina S Wanrooij, Henriëtte E van der Horst and Luc Deliens
    Citation: BMC Palliative Care 2012 11:9
  27. People Living with HIV/AIDS (PLWHA) require significant care and support; however, most care needs are still unmet. To our knowledge, no studies have described the activities and challenges of care services in...

    Authors: Taddese Alemu Zerfu, Yaliso Yaya, Selamawit Dagne, Kebede Deribe, Horacio Ruiseñor-Escudero and Sibhatu Biadgilign
    Citation: BMC Palliative Care 2012 11:8
  28. Typically, dementia involves progressive cognitive and functional deterioration, leading to death. A palliative approach recognizes the inevitable health decline, focusing on quality of life. The approach is h...

    Authors: Christine Toye, Andrew L Robinson, Moyez Jiwa, Sharon Andrews, Fran McInerney, Barbara Horner, Kristi Holloway and Brigit Stratton
    Citation: BMC Palliative Care 2012 11:4
  29. The results of a small number of studies of autonomic function in patients with advanced cancer suggest that autonomic dysfunction (AD) is common. In other disease-specific groups this is associated with decre...

    Authors: Carol A Stone, Rose Anne Kenny, Brid Nolan and Peter G Lawlor
    Citation: BMC Palliative Care 2012 11:3
  30. Disseminating palliative care is a critical task throughout the world. Several outcome studies explored the effects of regional palliative care programs on a variety of end-points, and some qualitative studies...

    Authors: Tatsuya Morita, Mitsunori Miyashita, Akemi Yamagishi, Nobuya Akizuki, Yoshiyuki Kizawa, Yutaka Shirahige, Miki Akiyama, Kei Hirai, Motohiro Matoba, Masako Yamada, Taketoshi Matsumoto, Takuhiro Yamaguchi and Kenji Eguchi
    Citation: BMC Palliative Care 2012 11:2
  31. End-of-life care research across Africa is under-resourced and under-developed. A central issue in research in end-of-life care is the measurement of effects and outcomes of care on patients and families. Litt...

    Authors: Julia Downing, Steffen T Simon, Faith N Mwangi-Powell, Hamid Benalia, Barbara A Daveson, Irene J Higginson, Richard Harding and Claudia Bausewein
    Citation: BMC Palliative Care 2012 11:1
  32. Previous studies have found that cancer patients undergoing chemotherapy can effectively manage their own symptoms when given tailored advice. This approach, however, may challenge patients with poor performan...

    Authors: Maria J Silveira, Charles W Given, Kemp B Cease, Alla Sikorskii, Barbara Given, Laurel L Northouse and John D Piette
    Citation: BMC Palliative Care 2011 10:21
  33. Public involvement in research on sensitive subjects, such as death and dying, can help to ensure that questions are framed to reflect the interests of their peers, develop a shared understanding of issues rai...

    Authors: Claire Goodman, Elspeth Mathie, Marion Cowe, Alex Mendoza, Daphne Westwood, Diane Munday, Patricia M Wilson, Clare Crang, Katherine Froggatt, Steve Iliffe, Jill Manthorpe, Heather Gage and Stephen Barclay
    Citation: BMC Palliative Care 2011 10:20
  34. To care for terminally ill and dying patients requires a thorough medical education, encompassing skills, knowledge, and attitudes in the field of palliative care. Undergraduate medical students in Germany wil...

    Authors: Martin Weber, Sven Schmiedel, Friedemann Nauck and Bernd Alt-Epping
    Citation: BMC Palliative Care 2011 10:19
  35. Over the past ten years there has been an increasing focus on the need for improving the experience of end of life care. A number of policy initiatives have been introduced to develop approaches to discussing ...

    Authors: Karen Cox, Nima Moghaddam, Kathryn Almack, Kristian Pollock and Jane Seymour
    Citation: BMC Palliative Care 2011 10:18
  36. We aimed to clarify the factors affecting outcomes of home care for patients with malignant diseases.

    Authors: Yuko Kodama, Tomoko Matsumura, Takuhiro Yamaguchi, Morihito Takita, Shohei Kawagoe, Yukihiro Kimura, Satoshi Hirahara, Hiroshi Suzuki, Hideki Ohta, Shigeru Onozawa, Tadashi Wada, Yukiyasu Nakamura, Kazushi Nakano, Masahiro Kami and Koichiro Yuji
    Citation: BMC Palliative Care 2011 10:17
  37. While the home is the most common setting for the provision of palliative care in Australia, a common problem encountered here is the inability of patient/carers to manage medications, which can lead to misadv...

    Authors: Safeera Y Hussainy, Margaret Box and Sandy Scholes
    Citation: BMC Palliative Care 2011 10:16
  38. Breathlessness is one of the core symptoms, particularly persistent and frequent, towards the end of life. There is no evidence of how the experience of breathlessness differs across conditions. This paper com...

    Authors: Marjolein H Gysels and Irene J Higginson
    Citation: BMC Palliative Care 2011 10:15
  39. Overuse of anti-cancer therapy is an important quality-of-care issue. An aggressive approach to treatment can have negative effects on quality of life and cost, but its effect on survival is not well-defined.

    Authors: Akiko M Saito, Mary Beth Landrum, Bridget A Neville, John Z Ayanian and Craig C Earle
    Citation: BMC Palliative Care 2011 10:14
  40. Due to the growing number of elderly with advanced chronic conditions, healthcare services will come under increasing pressure. Teleconsultation is an innovative approach to deliver quality of care for palliat...

    Authors: Froukje Duursma, Henk J Schers, Kris CP Vissers and Jeroen Hasselaar
    Citation: BMC Palliative Care 2011 10:13
  41. Clinical depression is highly prevalent yet under-detected and under-treated in palliative care settings and is associated with a number of adverse medical and psychological outcomes for patients and their fam...

    Authors: David J Hallford, Marita P McCabe, David Mellor, Tanya E Davison, Denisa L Goldhammer, Kuruvilla George and Shane Storer
    Citation: BMC Palliative Care 2011 10:11
  42. Bereavement is a condition which most people experience several times during their lives. A small but noteworthy proportion of bereaved individuals experience a syndrome of prolonged psychological distress in ...

    Authors: Mai-Britt Guldin, Maja O'Connor, Ineta Sokolowski, Anders B Jensen and Peter Vedsted
    Citation: BMC Palliative Care 2011 10:9
  43. Many people live and die in pain in Africa. We set out to describe patient, family and local community perspectives on the impact of three community based palliative care interventions in sub-Saharan Africa.

    Authors: Liz Grant, Judith Brown, Mhoira Leng, Nadia Bettega and Scott A Murray
    Citation: BMC Palliative Care 2011 10:8
  44. This study explores the experience of palliative patients and their family members of a family meeting model, utilised as an instrument for the provision of spiritual and psychosocial care. In doing so the stu...

    Authors: Heather M Tan, Anne Wilson, Ian Olver and Christopher Barton
    Citation: BMC Palliative Care 2011 10:7

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