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  1. Despite the huge burden of HIV in sub-Saharan Africa, there is little evidence of the multidimensional needs of patients with HIV infection to inform the person-centred care across physical, psychological, soc...

    Authors: Lucy Selman, Victoria Simms, Suzanne Penfold, Richard A Powell, Faith Mwangi-Powell, Julia Downing, Nancy Gikaara, Grace Munene, Irene J Higginson and Richard Harding
    Citation: BMC Palliative Care 2013 12:35
  2. The World Health Organisation recognises palliative care as a global public health issue and this is reflected at strategic level. Despite this, palliative care may not be universally welcomed. Surveys over th...

    Authors: Sonja McIlfatrick, Felicity Hasson, Dorry McLaughlin, Gail Johnston, Audrey Roulston, Lesley Rutherford, Helen Noble, Sheila Kelly, Avril Craig and W George Kernohan
    Citation: BMC Palliative Care 2013 12:34
  3. As palliative care research continues to expand across Europe, and the world, questions exist about the nature and type of research undertaken in addition to the research priorities for the future. This system...

    Authors: Sonja J McIlfatrick and Tara Murphy
    Citation: BMC Palliative Care 2013 12:33
  4. This paper focuses on the sustainability of existing palliative care teams that provide home-based care in a shared care model. For the purposes of this study, following Evashwick and Ory (2003), sustainabilit...

    Authors: Lily DeMiglio and Allison M Williams
    Citation: BMC Palliative Care 2013 12:32
  5. The need for palliative care in sub-Saharan Africa is staggering: this region shoulders over 67% of the global burden of HIV/AIDS and cancer. However, provisions for these essential services remain limited and...

    Authors: Kamal G Shah, Tara Lyn Slough, Ping Teresa Yeh, Suave Gombwa, Athanase Kiromera, Z Maria Oden and Rebecca R Richards-Kortum
    Citation: BMC Palliative Care 2013 12:31
  6. Palliative care for people with dementia is often sub-optimal. This is partly because of the challenging nature of dementia itself, and partly because of system failings that are particularly salient in primar...

    Authors: Steve Iliffe, Nathan Davies, Myrra Vernooij-Dassen, Jasper van Riet Paap, Ragni Sommerbakk, Elena Mariani, Birgit Jaspers, Lukas Radbruch, Jill Manthorpe, Laura Maio, Dagny Haugen and Yvonne Engels
    Citation: BMC Palliative Care 2013 12:30
  7. End-of-life care in dementia in nursing homes is often found to be suboptimal. The Feedback on End-of-Life care in dementia (FOLlow-up) project tests the effectiveness of audit- and feedback to improve the qua...

    Authors: Jannie A Boogaard, Mirjam C van Soest-Poortvliet, Johannes R Anema, Wilco P Achterberg, Cees M P M Hertogh, Henrica C W de Vet and Jenny T van der Steen
    Citation: BMC Palliative Care 2013 12:29
  8. Population-based mortality follow-back survey designs have been used to collect information concerning end-of-life care from bereaved family members in several countries. In Canada, this design was recently em...

    Authors: Beverley Lawson, Kristine Van Aarsen and Frederick Burge
    Citation: BMC Palliative Care 2013 12:28
  9. Pain is an important issue in end of life care. Although musculoskeletal pain is common in older adults, it is rarely associated with the cause of death and may be overlooked as death approaches. Hence a major...

    Authors: Alison Kate Lillie, Sue Read, Christian Mallen, Peter Croft and John McBeth
    Citation: BMC Palliative Care 2013 12:27
  10. Aboriginal Australians have a lower rate of utilisation of palliative care services than the general population. This study aimed to explore care providers’ experiences and concerns in providing palliative car...

    Authors: Shaouli Shahid, Dawn Bessarab, Katherine D van Schaik, Samar M Aoun and Sandra C Thompson
    Citation: BMC Palliative Care 2013 12:26
  11. Lung cancer is the leading cause of death from cancer in England. About 40% of patients with lung cancer are diagnosed following an emergency admission (DFEA) to hospital. DFEA is more common in women, and mor...

    Authors: Andrew Wilcock, Vincent Crosby, Sarah Freer, Alison Freemantle, Glenys Caswell and Jane Seymour
    Citation: BMC Palliative Care 2013 12:24
  12. Hypoventilation due to respiratory muscle atrophy is the most common cause of death as a result of amyotrophic lateral sclerosis (ALS). Patients aged over 65 years and presenting bulbar symptoms are likely to ...

    Authors: Waltteri Siirala, Riku Aantaa, Klaus T Olkkola, Tarja Saaresranta and Arno Vuori
    Citation: BMC Palliative Care 2013 12:23
  13. Although meta-analyses have demonstrated that physical activity can positively impact quality of life outcomes in early stage cancer patients, it is not yet known whether these benefits can be extended to pati...

    Authors: Sonya S Lowe, Sharon M Watanabe, Vickie E Baracos and Kerry S Courneya
    Citation: BMC Palliative Care 2013 12:22
  14. Middle Cerebral Artery (MCA) territory strokes can be disabling and may leave patients unable to swallow safely. Decisions regarding artificial nutrition and goals of care often arise in patients with severe s...

    Authors: Christa O’Hana V San Luis, Ilene Staff, Gilbert J Fortunato and Louise D McCullough
    Citation: BMC Palliative Care 2013 12:21
  15. The introduction of paediatric palliative care and referral to specialised teams still occurs late in the illness trajectory of children with life-limiting diseases. The aim of this ongoing multipart study was...

    Authors: Eva Bergstraesser, Richard D Hain and José L Pereira
    Citation: BMC Palliative Care 2013 12:20
  16. Children’s palliative care is a relatively new clinical specialty. Its nature is multi-dimensional and its delivery necessarily multi-professional. Numerous diverse public and not-for-profit organisations typi...

    Authors: Jane Noyes, Rhiannon Tudor Edwards, Richard P Hastings, Richard Hain, Vasiliki Totsika, Virginia Bennett, Lucie Hobson, Gareth R Davies, Ciarán Humphreys, Mary Devins, Llinos Haf Spencer and Mary Lewis
    Citation: BMC Palliative Care 2013 12:18
  17. It is estimated that 29% of deaths in Australia are caused by malignant disease each year and can be expected to increase with population ageing. In advanced cancer, the prevalence of fatigue is high at 70–90%...

    Authors: Hugh EJ Senior, Geoffrey K Mitchell, Jane Nikles, Sue-Ann Carmont, Philip J Schluter, David C Currow, Rohan Vora, Michael J Yelland, Meera Agar, Phillip D Good and Janet R Hardy
    Citation: BMC Palliative Care 2013 12:17
  18. Improving palliative care management in acute hospital settings has been identified as a priority internationally. The aim of this study was to establish the proportion of inpatients within one acute hospital ...

    Authors: Merryn Gott, Rosemary Frey, Deborah Raphael, Anne O’Callaghan, Jackie Robinson and Michal Boyd
    Citation: BMC Palliative Care 2013 12:15
  19. Dying at home is highly prevalent in Africa partly due to lack of accessibility of modern health services. In turn, limited infrastructure and health care deliveries in Africa complicate access to health servi...

    Authors: Aderaw Anteneh, Tekebash Araya and Awoke Misganaw
    Citation: BMC Palliative Care 2013 12:14
  20. Dying is inescapable yet remains a neglected issue in modern health care. The research question in this study was “what is going on in the field of dying today?” What emerged was to eventually present a ground...

    Authors: Hans O Thulesius, Helen Scott, Gert Helgesson and Niels Lynöe
    Citation: BMC Palliative Care 2013 12:13
  21. Radiation therapy is a well-recognized, effective modality used for palliative care. Most studies completed to date have endpoints of one month or greater after treatment completion. This study analyzed the re...

    Authors: Pierre Truntzer, David Atlani, Marius Pop, Jean-Baptiste Clavier, Sébastien Guihard, Catherine Schumacher and Georges Noel
    Citation: BMC Palliative Care 2013 12:12
  22. The requirement to meet the palliative needs of acute hospital populations has grown in recent years. With increasing numbers of frail older people needing hospital care as a result of both malignant and non-m...

    Authors: Tony Ryan, Christine Ingleton, Clare Gardiner, Chris Parker, Merryn Gott and Bill Noble
    Citation: BMC Palliative Care 2013 12:11
  23. To determine the international recommendations and current practices for the treatment and prevention of palliative emergencies. The primary goal of the study was to gather information from experts on their na...

    Authors: Christoph HR Wiese, Christoph L Lassen, Utz E Bartels, Mahmoud Taghavi, Saleem Elhabash, Bernhard M Graf and Gerd G Hanekop
    Citation: BMC Palliative Care 2013 12:10
  24. There is clear evidence that the full range of services required to support people dying at home are far from being implemented, either in England or elsewhere. No studies to date have attempted to identify th...

    Authors: Merryn Gott, Clare Gardiner, Christine Ingleton, Mark Cobb, Bill Noble, Michael I Bennett and Jane Seymour
    Citation: BMC Palliative Care 2013 12:9
  25. Much progress has been made in the provision of palliative care across sub-Saharan Africa, however much still remains to be done, particularly in the area of children’s palliative care (CPC). The Beacon Centre...

    Authors: Julia D Downing, Joan Marston, Casey Selwyn and Laura Ross-Gakava
    Citation: BMC Palliative Care 2013 12:8
  26. Home-based models of hospice and palliative care are promoted with the argument that most people prefer to die at home. We examined the heterogeneity in preferences for home death and explored, for the first t...

    Authors: Barbara Gomes, Natalia Calanzani, Marjolein Gysels, Sue Hall and Irene J Higginson
    Citation: BMC Palliative Care 2013 12:7
  27. In recent years, there have been several studies, using a wide variety of methods, aimed at developing quality indicators for palliative care. In this Quality Indicators for Palliative Care study (Q-PAC study)...

    Authors: Kathleen Leemans, Joachim Cohen, Anneke L Francke, Robert Vander Stichele, Susanne JJ Claessen, Lieve Van den Block and Luc Deliens
    Citation: BMC Palliative Care 2013 12:6
  28. The United Kingdom has led the world in the development of children’s palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treat...

    Authors: Jane Noyes, Richard P Hastings, Mary Lewis, Richard Hain, Virginia Bennett, Lucie Hobson and Llinos Haf Spencer
    Citation: BMC Palliative Care 2013 12:5
  29. Over the last decade technology has rapidly changed the ability to provide home telehealth services. At the same time, pediatric palliative care has developed as a small, but distinct speciality. Understanding...

    Authors: Natalie Bradford, Nigel R Armfield, Jeanine Young and Anthony C Smith
    Citation: BMC Palliative Care 2013 12:4
  30. SAIATU is a program of specially trained in-home social assistance and companionship which, since February 2011, has provided support to end-of-life patients, enabling the delivery of better clinical care by h...

    Authors: Emilio Herrera Molina, Roberto Nuño-Solinis, Gorka Espiau Idioaga, Silvia Librada Flores, Naomi Hasson and Juan F Orueta Medía
    Citation: BMC Palliative Care 2013 12:3
  31. Levomepromazine is an antipsychotic drug that is used clinically for a variety of distressing symptoms in palliative and end-of-life care. We undertook a systematic review based on the question “What is the pu...

    Authors: Isabel Dietz, Andrea Schmitz, Ingrid Lampey and Christian Schulz
    Citation: BMC Palliative Care 2013 12:2
  32. Limited decision-making capacity (DMC) of older people affects their abilities to communicate about their preferences regarding end-of-life care. In an advance directive (AD) people can write down preferences ...

    Authors: Pam J Kaspers, Bregje D Onwuteaka-Philipsen, Dorly JH Deeg and H Roeline W Pasman
    Citation: BMC Palliative Care 2013 12:1
  33. Hypoventilation due to respiratory insufficiency is the most common cause of death in amyotrophic lateral sclerosis (ALS) and non-invasive ventilation (NIV) can be used as a palliative treatment. The current g...

    Authors: Waltteri Siirala, Tarja Saaresranta, Arno Vuori, Sanna Salanterä, Klaus T Olkkola and Riku Aantaa
    Citation: BMC Palliative Care 2012 11:26
  34. The “Patients’ Rights and End of Life Care” Act came into force in France in 2005. It allows withholding/withdrawal of life-support treatment, and intensified use of medications that may hasten death through a...

    Authors: Sophie Pennec, Alain Monnier, Silvia Pontone and Régis Aubry
    Citation: BMC Palliative Care 2012 11:25
  35. Older patients often experience sub-standard communication in the palliative phase of illness. Due to the importance of good communication in patient-centred end-of-life care, it is essential to understand the...

    Authors: Natalie Evans, H Roeline W Pasman, Sheila A Payne, Jane Seymour, Sabine Pleschberger, Reginald Deschepper and Bregje D Onwuteaka-Philipsen
    Citation: BMC Palliative Care 2012 11:24
  36. Recent end of life care policy prioritises patient choice over place of care and in particular promotes dying at home. This policy is predicated on the assumption that there are family carers able and willing ...

    Authors: Sheila Payne, Sarah Brearley, Christine Milligan, David Seamark, Carol Thomas, Xu Wang, Susan Blake and Mary Turner
    Citation: BMC Palliative Care 2012 11:23
  37. Palliative care should be integrated early into the care trajectories of people with life threatening illness such as stroke. However published guidance focuses primarily on the end of life, and there is a gap...

    Authors: Christopher R Burton and Sheila Payne
    Citation: BMC Palliative Care 2012 11:22
  38. Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment a...

    Authors: Franziska Kühne, Thomas Krattenmacher, Corinna Bergelt, Johanna C Ernst, Hans-Henning Flechtner, Daniel Führer, Wolfgang Herzog, Kai v Klitzing, Georg Romer and Birgit Möller
    Citation: BMC Palliative Care 2012 11:21
  39. In patients with advanced, incurable cancer, anticancer treatment may be used to alleviate cancer-related symptoms, but monitoring of them in daily practice is rarely done. We aim to test the effectiveness of ...

    Authors: David Blum, Dieter Koeberle, Karin Ribi, Shu-Fang Hsu Schmitz, Urs Utiger, Dirk Klingbiel and Florian Strasser
    Citation: BMC Palliative Care 2012 11:19
  40. Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in t...

    Authors: Brenda Bentley, Samar M Aoun, Moira O’Connor, Lauren J Breen and Harvey Max Chochinov
    Citation: BMC Palliative Care 2012 11:18
  41. Our aim was to obtain a clearer picture of the relevant care experiences and care perceptions of incurably ill Turkish and Moroccan patients, their relatives and professional care providers, as well as of comm...

    Authors: Fuusje M de Graaff, Patriek Mistiaen, Walter LJM Devillé and Anneke L Francke
    Citation: BMC Palliative Care 2012 11:17
  42. The aim of this study was to determine factors associated with the severity of cancer related fatigue (CRF) and predictors of improvement of CRF at the first follow-up visit in patients with advanced cancer re...

    Authors: Sriram Yennu, Diana L Urbauer and Eduardo Bruera
    Citation: BMC Palliative Care 2012 11:16
  43. This study explores with patients, carers and health care professionals if, when and how Advance Care Planning conversations about patients’ preferences for place of care (and death) were facilitated and docum...

    Authors: Kathryn Almack, Karen Cox, Nima Moghaddam, Kristian Pollock and Jane Seymour
    Citation: BMC Palliative Care 2012 11:15
  44. Homeless populations have complex and diverse end-of-life care needs. However, they typically die outside of the end-of-life care system. To date, few studies have explored barriers to the end-of-life care sys...

    Authors: Ryan McNeil, Manal Guirguis-Younger and Laura B Dilley
    Citation: BMC Palliative Care 2012 11:14
  45. To maintain patients’ quality of life is one of the major goals in palliative home care provided by general practitioners (GPs). GPs need adequate training to care for palliative patients. The paper seeks to e...

    Authors: Katja Hermann, Peter Engeser, Joachim Szecsenyi and Antje Miksch
    Citation: BMC Palliative Care 2012 11:13
  46. Unbearable suffering most frequently is reported in end-of-life cancer patients in primary care. However, research seldom addresses unbearable suffering. The aim of this study was to comprehensively investigat...

    Authors: Cees DM Ruijs, Ad JFM Kerkhof, Gerrit van der Wal and Bregje D Onwuteaka-Philipsen
    Citation: BMC Palliative Care 2012 11:12

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