Mair FS, Jani BD. Emerging trends and future research on the role of socioeconomic status in chronic illness and multimorbidity. Lancet Public Health. 2020;5(3):e128–9.
Santos Salas A, Watanabe SM, Tarumi Y, Wildeman T, Hermosa García AM, Adewale B, et al. Social disparities and symptom burden in populations with advanced cancer: specialist palliative care providers’ perspectives. Support Care Cancer. 2019;27(12):4733–44.
Marmot M. Health equity in England: the Marmot review 10 years on. BMJ. 2020;368:m693.
Singh GK, Jemal A. Socioeconomic and racial/ethnic disparities in cancer mortality, incidence, and survival in the United States, 1950–2014: over six decades of changing patterns and widening inequalities. J Environ Public Health. 2017;2017:2819372.
Hastert TA, Beresford SA, Sheppard L, White E. Disparities in cancer incidence and mortality by area-level socioeconomic status: a multilevel analysis. J Epidemiol Community Health. 2015;69(2):168–76.
Office for National Statistics. National Survey of Bereaved People (VOICES) 2015: quality of care delivered in the last 3 months of life for adults who died in England. 2016.
Davies JM, Sleeman KE, Leniz J, Wilson R, Higginson IJ, Verne J, et al. Socioeconomic position and use of healthcare in the last year of life: a systematic review and meta-analysis. PLoS Med. 2019;16(4):e1002782.
Asaria M, Doran T, Cookson R. The costs of inequality: whole-population modelling study of lifetime inpatient hospital costs in the English National Health Service by level of neighbourhood deprivation. J Epidemiol Community Health. 2016;70(10):990–6.
Macfarlane M, Carduff E. Does place of death vary by deprivation for patients known to specialist palliative care services? BMJ Support Palliat Care. 2018;8(4):428–30.
Buck J, Webb L, Moth L, Morgan L, Barclay S. Persistent inequalities in Hospice at Home provision. BMJ Support Palliat Care. 2020;10(3):e23.
Mason B, Kerssens JJ, Stoddart A, Murray SA, Moine S, Finucane AM, et al. Unscheduled and out-of-hours care for people in their last year of life: a retrospective cohort analysis of national datasets. BMJ Open. 2020;10(11):e041888.
Barratt H, Asaria M, Sheringham J, Stone P, Raine R, Cookson R. Dying in hospital: socioeconomic inequality trends in England. J Health Serv Res Policy. 2017;22(3):149–54.
Neergaard MA, Brunoe AH, Skorstengaard MH, Nielsen MK. What socio-economic factors determine place of death for people with life-limiting illness? A systematic review and appraisal of methodological rigour. Palliat Med. 2019;33(8):900–25.
Sleeman KE, Davies JM, Verne J, Gao W, Higginson IJ. The changing demographics of inpatient hospice death: population-based cross-sectional study in England, 1993–2012. Palliat Med. 2016;30(1):45–53.
Gao W, Ho YK, Verne J, Glickman M, Higginson IJ. Changing patterns in place of cancer death in England: a population-based study. PLoS Med. 2013;10(3):e1001410.
Koffman J, Burke G, Dias A, Raval B, Byrne J, Gonzales J, et al. Demographic factors and awareness of palliative care and related services. Palliat Med. 2007;21(2):145–53.
Dixon J, King D, Matosevic T, Clark C, Knapp K. Equity in the provision of palliative care in the UK: review of evidence. London: Personal Social Services Research Unit, London School of Economics and Political Science; 2015.
Davies JM, Maddocks M, Chua KC, Demakakos P, Sleeman KE, Murtagh FEM. Socioeconomic position and use of hospital-based care towards the end of life: a mediation analysis using the English Longitudinal Study of Ageing. Lancet Public health. 2021;6(3):e155–63.
Walsh B, Laudicella M. Disparities in cancer care and costs at the end of life: evidence from England’s National Health Service. Health Aff (Project Hope). 2017;36(7):1218–26.
Gold R, Hartung HP, Hohlfeld R, Wiendl H, Kieseier BC, Linker RA, et al. Therapy of multiple sclerosis with monoclonal antibodies: Results and recommendations of a symposium of the medical advisory board of the german MS society. Aktuelle Neurologie. 2009;36(7):334–44.
Turner V, Flemming K. Socioeconomic factors affecting access to preferred place of death: a qualitative evidence synthesis. Palliat Med. 2019;33(6):607–17.
Lewis JM, DiGiacomo M, Currow DC, Davidson PM. Dying in the margins: understanding palliative care and socioeconomic deprivation in the developed world. J Pain Symptom Manage. 2011;42(1):105–18.
Glasgow GEoLSGUo. Dying in the Margins. 2020. Available from: https://www.gla.ac.uk/research/az/endoflifestudies/projects/dyinginthemargins/.
Rowley J, Richards N, Carduff E, Gott M. The impact of poverty and deprivation at the end of life: a critical review. Palliat Care Soc Pract. 2021;15:26323524211033870.
Whittemore R, Knafl K. The integrative review: updated methodology. J Adv Nurs. 2005;52(5):546–53.
Carduff E, Bowers S, Chin M, O'Riordan M. The experiences of people living with socio-economic deprivation who are approaching the end of life: an integrative review [updated October 201926/11/2021]. Available from: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019151906.
Page MJ, McKenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD, et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. J Clin Epidemiol. 2021;134:178–89.
National Institute for Health and Care Excellence. End of life care for adults: service delivery NICE guideline [NG142]. 2017. Available from: https://www.nice.org.uk/guidance/ng142. Accessed 17 Jan 2022.
Rietjens JA, Bramer WM, Geijteman EC, van der Heide A, Oldenmenger WH. Development and validation of search filters to find articles on palliative care in bibliographic databases. Palliat Med. 2019;33(4):470–4.
World Health Organisation. Palliative Care. 2020. Available from: https://www.who.int/news-room/fact-sheets/detail/palliative-care.
Martin D, Brigham P, Roderick P, Barnett S, Diamond I. The (mis)Representation of Rural Deprivation. Environ Plan A. 2000;32(4):735–51.
Galobardes B, Shaw M, Lawlor DA, Lynch JW, Davey SG. Indicators of socioeconomic position (part 1). J Epidemiol Community Health. 2006;60(1):7–12.
Galobardes B, Shaw M, Lawlor DA, Lynch JW. Indicators of socioeconomic position (part 2). J Epidemiol Community Health. 2006;60(2):95.
Nelson KE, Wright R, Peeler A, Brockie T, Davidson PM. Sociodemographic disparities in access to hospice and palliative care: an integrative review. Am J Hosp Palliat Care. 2021;38(11):1378–90.
Mondor L, Wodchis WP, Tanuseputro P. Persistent socioeconomic inequalities in location of death and receipt of palliative care: a population-based cohort study. Palliat Med. 2020;34(10):1393–401.
French M, Keegan T, Anestis E, Preston N. Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis. BMC Palliat Care. 2021;20(1):179.
World Bank. World Bank list of economies. 2020. Available from: https://databank.worldbank.org/data/download/site-content/CLASS.xls. Last accessed 21 Jan 2022.
Caldwell K, Henshaw L, Taylor G. Developing a framework for critiquing health research: an early evaluation. Nurse Educ Today. 2011;31(8):e1-7.
Bloomer MJ, Hutchinson AM, Brooks L, Botti M. Dying persons’ perspectives on, or experiences of, participating in research: an integrative review. Palliat Med. 2018;32(4):851–60.
Daugaard C, Neergaard MA, Vestergaard AHS, Nielsen MK, Johnsen SP. Socioeconomic inequality in drug reimbursement during end-of-life care: a nationwide study. J Epidemiol Community Health. 2019;73(5):435–42.
Ankuda CK, Kersting K, Guetterman TC, Haefner J, Fonger E, Paletta M, et al. What matters most? A mixed methods study of critical aspects of a home-based palliative program. Am J Hosp Palliat Care. 2018;35(2):236–43.
Azhar A, Yennurajalingam S, Ramu A, Zhang H, Haider A, Williams JL, et al. timing of referral and characteristics of uninsured, medicaid, and insured patients referred to the outpatient supportive care center at a comprehensive cancer center. J Pain Symptom Manage. 2018;55(3):973–8.
Brown CE, Engelberg RA, Sharma R, Downey L, Fausto JA, Sibley J, et al. Race/ethnicity, socioeconomic status, and healthcare intensity at the end of life. J Palliat Med. 2018;21(9):1308–16.
Cervantez SR, Tenner LL, Schmidt S, Aduba IO, Jones JT, Ali N, et al. Symptom burden and palliative referral disparities in an Ambulatory South Texas Cancer Center. Front Oncol. 2018;8:443.
Huang CY, Hung YT, Chang CM, Juang SY, Lee CC. The association between individual income and aggressive end-of-life treatment in older cancer decedents in Taiwan. PLoS ONE. 2015;10(1):e0116913. https://doi.org/10.1371/journal.pone.0116913.
Cai J, Guerriere DN, Zhao H, Coyte PC. Socioeconomic differences in and predictors of home-based palliative care health service use in Ontario, Canada. Int J Environ Res Public Health. 2017;14(7):802.
Koroukian SM, Schiltz NK, Warner DF, Given CW, Schluchter M, Owusu C, et al. Social determinants, multimorbidity, and patterns of end-of-life care in older adults dying from cancer. J Geriatr Oncol. 2017;8(2):117–24.
Krishnan P, Thompson G, McClement S. Predicting hospital transfers among nursing home residents in the last months of life. Int J Palliat Nurs. 2017;23(11):535–42.
Carlucci A, Vitacca M, Malovini A, Pierucci P, Guerrieri A, Barbano L, et al. End-of-life discussion, patient understanding and determinants of preferences in very severe COPD patients: a multicentric study. COPD. 2016;13(5):632–8.
Dhingra L, Dieckmann NF, Knotkova H, Chen J, Riggs A, Breuer B, et al. A high-touch model of community-based specialist palliative care: latent class analysis identifies distinct patient subgroups. J Pain Symptom Manage. 2016;52(2):178–86.
Karikari-Martin P, McCann JJ, Farran CJ, Hebert LE, Haffer SC, Phillips M. Race, any cancer, income, or cognitive function: what inf luences hospice or aggressive services use at the end of life among community-dwelling medicare beneficiaries? Am J Hosp Palliat Care. 2016;33(6):537–45.
Khosla N, Curl AL, Washington KT. Trends in engagement in advance care planning behaviors and the role of socioeconomic status. Am J Hosp Palliat Care. 2016;33(7):651–7.
Lee JJ, Long AC, Curtis JR, Engelberg RA. The influence of race/ethnicity and education on family ratings of the quality of dying in the ICU. J Pain Symptom Manage. 2016;51(1):9–16.
Schou-Andersen M, Ullersted MP, Jensen AB, Neergaard MA. Factors associated with preference for dying at home among terminally ill patients with cancer. Scand J Caring Sci. 2016;30(3):466–76.
Neergaard MA, Olesen F, Sondergaard J, Vedsted P, Jensen AB. Are cancer patients’ socioeconomic and cultural factors associated with contact to general practitioners in the last phase of life? Int J Family Med. 2015;2015:952314.
Tang ST, Lin KC, Chen JS, Chang WC, Hsieh CH, Chou WC. Threatened with death but growing: changes in and determinants of posttraumatic growth over the dying process for Taiwanese terminally ill cancer patients. Psychooncology. 2015;24(2):147–54.
Tucker-Seeley RD, Abel GA, Uno H, Prigerson H. Financial hardship and the intensity of medical care received near death. Psychooncology. 2015;24(5):572–8.
Bhatraju P, Friedenberg AS, Uppal A, Evans L. Factors associated with utilization of an inpatient palliative care consultation service in an urban public hospital. Am J Hosp Palliat Care. 2014;31(6):641–4.
Chang CM, Wu CC, Yin WY, Juang SY, Yu CH, Lee CC. Low socioeconomic status is associated with more aggressive end-of-life care for working-age terminal cancer patients. Oncologist. 2014;19(12):1241–8.
Lewis JM, DiGiacomo M, Currow DC, Davidson PM. Social capital in a lower socioeconomic palliative care population: a qualitative investigation of individual, community and civic networks and relations. BMC Palliat Care. 2014;13(1):30.
Tang ST, Liu TW, Chow JM, Chiu CF, Hsieh RK, Chen CH, et al. Associations between accurate prognostic understanding and end-of-life care preferences and its correlates among Taiwanese terminally ill cancer patients surveyed in 2011–2012. Psychooncology. 2014;23(7):780–7.
Chang YJ, Kwon YC, Lee WJ, Do YR, Seok LK, Kim HT, et al. Burdens, needs and satisfaction of terminal cancer patients and their caregivers. Asian Pac J Cancer Prev. 2013;14(1):209–16.
Masucci L, Guerriere DN, Zagorski B, Coyte PC. Predictors of health service use over the palliative care trajectory. J Palliat Med. 2013;16(5):524–30.
Sahin ZA, Tan M, Polat H. Hopelessness, depression and social support with end of life Turkish cancer patients. Asian Pac J Cancer Prev. 2013;14(5):2823–8.
Bergman J, Chi AC, Litwin MS. Quality of end-of-life care in low-income, uninsured men dying of prostate cancer. Cancer. 2010;116(9):2126–31.
Fergus C, Chinn D, Murray S. Assessing and improving out-of-hours palliative care in a deprived community: a rapid appraisal study. Palliat Med. 2010;24(5):493–500.
Maric DM, Jovanovic DM, Golubicic IV, Nagorni-Obradovic LJ, Stojsic JM, Pekmezovic TD. Psychological well-being in advanced NSCLC patients in Serbia: impact of sociodemographic and clinical factors. Neoplasma. 2010;57(1):1–7.
Chochinov HM, Hassard T, McClement S, Hack T, Kristjanson LJ, Harlos M, et al. The landscape of distress in the terminally ill. J Pain Symptom Manage. 2009;38(5):641–9.
Carr D. Is death “The Great Equalizer”? The social stratification of death quality in the United States. Ann Am Acad Pol Soc Sci. 2016;663(1):331–54.
Adler SR, Coulter YZ, Stone K, Glaser J, Duerr M, Enochty S. End-of-life concerns and experiences of living with advanced breast cancer among medically underserved women. J Pain Symptom Manage. 2019;58(6):959–67.
Bijnsdorp FM, Pasman HRW, Francke AL, Evans N, Peeters CF, van Groenou MIB. Who provides care in the last year of life? A description of care networks of community-dwelling older adults in the Netherlands. BMC Palliat Care. 2019;18(1):41.
Saphire ML, Prsic EH, Canavan ME, Wang SJ, Presley CJ, Davidoff AJ. Patterns of symptom management medication receipt at end-of-life among medicare beneficiaries with lung cancer. J Pain Symptom Manage. 2020;59(4):767-77.e1.
Yi D, Johnston BM, Ryan K, Daveson BA, Meier DE, Smith M, et al. Drivers of care costs and quality in the last 3 months of life among older people receiving palliative care: a multinational mortality follow-back survey across England, Ireland and the United States. Palliat Med. 2020;34(4):513–23.
Jacob J, Palat G, Verghese N, Chandran P, Rapelli V, Kumari S, et al. Health-related quality of life and its socio-economic and cultural predictors among advanced cancer patients: evidence from the APPROACH cross-sectional survey in Hyderabad-India. BMC Palliat Care. 2019;18(1):94.
Leng A, Jing J, Nicholas S, Wang J. Catastrophic health expenditure of cancer patients at the end-of-life: a retrospective observational study in China. BMC Palliat Care. 2019;18(1):43.
Saeed F, Hoerger M, Norton SA, Guancial E, Epstein RM, Duberstein PR. Preference for Palliative Care in Cancer Patients: Are Men and Women Alike? J Pain Symptom Manage. 2018;56(1):1-6.e1. https://doi.org/10.1016/j.jpainsymman.2018.03.014. Epub 2018 Mar 23. PMID: 29581034.
Stajduhar KI, Mollison A, Giesbrecht M, McNeil R, Pauly B, Reimer-Kirkham S, et al. “Just too busy living in the moment and surviving”: barriers to accessing health care for structurally vulnerable populations at end-of-life. BMC Palliat Care. 2019;18(1):1–14.
Wales J, Kalia S, Moineddin R, Husain A. The impact of socioeconomic status on place of death among patients receiving home palliative care in Toronto, Canada: a retrospective cohort study. J Palliat Care. 2020;35(3):167–73.
Aoun S, Bentley B, Funk L, Toye C, Grande G, Stajduhar KJ. A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions. Palliat Med. 2013;27(5):437–46.
McFadden A, Siebelt L, Gavine A, Atkin K, Bell K, Innes N, et al. Gypsy, Roma and Traveller access to and engagement with health services: a systematic review. Eur J Pub Health. 2018;28(1):74–81.
Scotland PH. Proportionate Universalism Briefing. 2014.
Sadler E, McKevitt C. “Expert carers”: An emergent normative model of the caregiver. Soc Theory Health. 2012;11(1):40–58.
Gov.uk. Income-related benefits: estimates of take-up [updated 29/10/202026/11/2021]. Available from: https://www.gov.uk/government/collections/income-related-benefits-estimates-of-take-up--2.
Williams C. Chronic illness and informal carers: “Non-persons” in the health system, neither carers, workers or citizens. Health Sociol Rev. 2012;21(1):58–68.
Government S. Coronavirus (COVID-19): impact on equality (research). 2020.
Carmody P, McCan G, Colleran C, O’Halloran C. COVID-19 in the Global South: impacts and responses. 2020.
Organisation for Economic Co-operation and Development. A systemic resilience approach to dealing with Covid-19 and future shocks. Available from: https://www.oecd.org/coronavirus/policy-responses/a-systemic-resilience-approach-to-dealing-with-covid-19-and-future-shocks-36a5bdfb/ . Last accessed 21 Jan 2022.
Public Health Scotland. The Carstairs and Morris Index. Available from: https://www.isdscotland.org/Products-and-services/Gpd-support/Deprivation/Carstairs/ . Last accessed 17 Jan 2022.
Oakes JM, Rossi PH. The measurement of SES in health research: current practice and steps toward a new approach. Soc Sci Med. 2003;56(4):769–84.