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92 result(s) for 'alzheimer's' within BMC Palliative Care

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  1. Palliative care is an effective model of care focused on maximizing quality of life and relieving the suffering of people with serious illnesses, including dementia. Evidence shows that many people receiving c...

    Authors: Kathleen T. Unroe, Mary Ersek, Wanzhu Tu, Alexander Floyd, Todd Becker, Jessica Trimmer, Jodi Lamie and John Cagle
    Citation: BMC Palliative Care 2023 22:105
    Content type: Study Protocol Published on:

  2. Little research exists on the role of β-amyloid PET scans as part of Alzheimer’s diagnostic tests and documentation of end-of-life preferences for persons with cognitive impairment. The study objectives were t...

    Authors: Emmanuelle Bélanger, Elyse Couch, Michaela S. Carroll, Nicole DePasquale, Emily A. Gadbois, Megan Shepherd-Banigan, Eric Jutkowitz, Courtney H. Van Houtven, Brenda L. Plassman and Terrie T. Wetle
    Citation: BMC Palliative Care 2022 21:194
    Content type: Research Published on:

  4. The burden of caring for People with Dementia (PWD) is heavy; identifying incentives that motivate them in providing care is essential in facilitating and optimizing care. This study aims to explore and descri...

    Authors: Shakiba Zahed, Maryam Emami, Shahrzad Bazargan-Hejazi, Ahmad Ali Eslami, Majid Barekatain and Fereshteh Zamani-Alavijeh
    Citation: BMC Palliative Care 2019 18:105
    Content type: Research article Published on:

  5. Community-based palliative care is associated with reduced hospital costs for people dying from cancer. It is unknown if reduced hospital costs are universal across multiple life-limiting conditions amenable t...

    Authors: Katrina Spilsbury and Lorna Rosenwax
    Citation: BMC Palliative Care 2017 16:68
    Content type: Research article Published on:

  6. End stage dementia is a particularly difficult aspect of care for patients with Alzheimer's disease and related dementias. In care institutions...

    Authors: Lionel Pazart, Chrystelle Vidal, Didier Faivre Chalon, Sophie Gauthier, Florent Schepens, Elodie Cretin, Jean-Louis Beal, Pierre Pfitzenmeyer and Régis Aubry
    Citation: BMC Palliative Care 2011 10:4
    Content type: Study protocol Published on:

  7. There is considerable uncertainty surrounding the medications used to delay the progression of dementia, especially their long-term efficacy and when to withdraw treatment with these agents. Current research r...

    Authors: Carole Parsons and Sarah Gamble
    Citation: BMC Palliative Care 2019 18:6
    Content type: Research article Published on:

  8. The importance of advance care planning for people with dementia has increased during the Coronavirus Disease 2019 Pandemic. However, family caregivers may have concerns about having conversations regarding ad...

    Authors: Miharu Nakanishi, Taeko Nakashima, Yuki Miyamoto, Syudo Yamasaki and Atsushi Nishida
    Citation: BMC Palliative Care 2022 21:114
    Content type: Research Published on:

  9. Palliative care is identified internationally as a priority for efficacious dementia care. Research into “effective models” of palliative care for people with dementia has been recommended by several European ...

    Authors: Niamh O’Connor, Siobhan Fox, W George Kernohan, Jonathan Drennan, Suzanne Guerin, Aileen Murphy and Suzanne Timmons
    Citation: BMC Palliative Care 2022 21:32
    Content type: Research Published on:

  10. No data exist on the size of the population potentially in need of palliative care in Germany. The aim of this study is to estimate the size of the German population that may benefit from palliative care.

    Authors: Nadine Scholten, Anna Lena Günther, Holger Pfaff and Ute Karbach
    Citation: BMC Palliative Care 2016 15:29
    Content type: Research article Published on:

  11. Home health care (HHC) is a leading source of care support for older adults with serious illness, particularly patients living with dementia (PLWD). Demand for HHC is expected to continue to grow, driven by an...

    Authors: Connie S. Cole, Ashley Dafoe, Caroline K. Tietbohl, Sarah R. Jordan, Amy G. Huebschmann, Hillary D. Lum and Christine D. Jones
    Citation: BMC Palliative Care 2023 22:122
    Content type: Research Published on:

  12. Music therapy interventions with informal carers of individuals with life-threatening illness at pre- and post-bereavement is an increasingly important clinical area. This systematic review is the first to syn...

    Authors: K. Gillespie, T. McConnell, A. Roulston, N. Potvin, C. Ghiglieri, I. Gadde, M. Anderson, J. Kirkwood, D. Thomas, L. Roche, M. O.’Sullivan, A. McCullagh and L. Graham-Wisener
    Citation: BMC Palliative Care 2024 23:55
    Content type: Research Published on:

  13. As Huntington’s disease (HD) is a progressive disease for which there is no cure yet, patients in the advanced stage of HD may benefit from palliative care.

    Authors: Dorine J. Boersema-Wijma, Erik van Duijn, Anne-Wil Heemskerk, Jenny T. van der Steen and Wilco P. Achterberg
    Citation: BMC Palliative Care 2023 22:54
    Content type: Research Published on:

    The Correction to this article has been published in BMC Palliative Care 2023 22:63

  14. The Hospice and Palliative Care Act of 2015 aimed at developing and regulating the provision of palliative care (PC) services in Germany. As a result of the legal changes, people with incurable diseases should...

    Authors: Katharina van Baal, Melissa Hemmerling, Jona Theodor Stahmeyer, Stephanie Stiel and Kambiz Afshar
    Citation: BMC Palliative Care 2024 23:105
    Content type: Research Published on:

  15. The use of full-population databases is under-explored to study the use, quality and costs of end-of-life care. Using the case of Belgium, we explored: (1) which full-population databases provide valid informa...

    Authors: Arno Maetens, Robrecht De Schreye, Kristof Faes, Dirk Houttekier, Luc Deliens, Birgit Gielen, Cindy De Gendt, Patrick Lusyne, Lieven Annemans and Joachim Cohen
    Citation: BMC Palliative Care 2016 15:86
    Content type: Research article Published on:

  16. Historically, specialist palliative care has been accessed by a greater proportion of people dying with cancer compared to people with other life-limiting conditions. More recently, a variety of measures to im...

    Authors: Lorna Rosenwax, Katrina Spilsbury, Beverley A. McNamara and James B. Semmens
    Citation: BMC Palliative Care 2016 15:46
    Content type: Research article Published on:

  17. Currently, there are no formalized measures for the quality of home based palliative care in Ontario. This study developed a set of potential quality indicators for seriously ill home care clients using a stan...

    Authors: Lisa E. Harman, Dawn M. Guthrie, Joachim Cohen, Anja Declercq, Kathryn Fisher, Donna Goodridge, John P. Hirdes and Hsien Seow
    Citation: BMC Palliative Care 2019 18:3
    Content type: Research article Published on:

  18. In the pursuit to provide the highest quality of person centered palliative care, client preferences, needs, and wishes surrounding end of life should be used to inform the plan of care. During a clinical asse...

    Authors: Shannon Freeman, Trevor Frise Smith, Eva Neufeld, Kathy Fisher and Satoru Ebihara
    Citation: BMC Palliative Care 2016 15:24
    Content type: Research article Published on:

  19. Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide...

    Authors: Nuriye Kupeli, Elizabeth L. Sampson, Gerard Leavey, Jane Harrington, Sarah Davis, Bridget Candy, Michael King, Irwin Nazareth, Louise Jones and Kirsten Moore
    Citation: BMC Palliative Care 2019 18:87
    Content type: Research article Published on:

  20. With improvement in hospice palliative care services and long-term care, Republic of Korea (hereafter South Korea) has recorded significant changes in places of death (e.g., hospital, home), especially among o...

    Authors: Tran Thi Xuan Mai, Eunsook Lee, Hyunsoon Cho and Yoon Jung Chang
    Citation: BMC Palliative Care 2018 17:16
    Content type: Research article Published on:

  21. Huntington’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care pla...

    Authors: Marina R. Ekkel, Marja F. I. A. Depla, Els M. L. Verschuur, Ruth B. Veenhuizen, Cees M. P. M. Hertogh and Bregje D. Onwuteaka-Philipsen
    Citation: BMC Palliative Care 2021 20:12
    Content type: Research article Published on:

  22. Research evidence suggests that a lack of engagement with palliative care and advance care planning could be attributed to a lack of knowledge, presence of misconceptions and stigma within the general public. ...

    Authors: Rachel Black, Felicity Hasson, Paul Slater, Esther Beck and Sonja McIlfatrick
    Citation: BMC Palliative Care 2024 23:98
    Content type: Research Published on:

  23. The provision and quality of end-of-life care (EoLC) in Germany is inconsistent. Therefore, an evaluation of current EoLC based on quality indicators is needed. This study aims to evaluate EoLC in Germany on t...

    Authors: Katharina van Baal, Sophie Schrader, Nils Schneider, Birgitt Wiese, Jona Theodor Stahmeyer, Sveja Eberhard, Siegfried Geyer, Stephanie Stiel and Kambiz Afshar
    Citation: BMC Palliative Care 2020 19:187
    Content type: Research article Published on:

  24. Physicians’ decision-making for seriously ill patients with advanced dementia is of high importance, especially as the prevalence of dementia is rising rapidly, and includes many challenging ethical, medical a...

    Authors: Saila Haapasalmi, Reetta P. Piili, Riina Metsänoja, Pirkko-Liisa I. Kellokumpu-Lehtinen and Juho T. Lehto
    Citation: BMC Palliative Care 2021 20:119
    Content type: Research Published on:

  25. Older people with noncancer conditions are less likely to be referred to palliative care services due to the inherent uncertain disease trajectory and a lack of standardised referral criteria. For older adults...

    Authors: Arisa Kawashima and Catherine J. Evans
    Citation: BMC Palliative Care 2023 22:20
    Content type: Research Published on:

  26. Since people with advanced dementia are usually not able to make complex decisions, it is usually the family caregivers, as proxies, who have to decide on treatments and their termination. However, these decis...

    Authors: Lina Riedl, Manuela Bertok, Julia Hartmann, Julia Fischer, Carola Rossmeier, Andreas Dinkel, Marion Ortner and Janine Diehl-Schmid
    Citation: BMC Palliative Care 2020 19:30
    Content type: Research article Published on:

  27. People with dementia and their family caregivers often encounter challenges in engaging in advance care planning (ACP), such as a lack of information and difficulties in engaging in ACP conversations. Using a ...

    Authors: Fanny Monnet, Lara Pivodic, Charlèss Dupont, Tinne Smets, Aline De Vleminck, Chantal Van Audenhove and Lieve Van den Block
    Citation: BMC Palliative Care 2024 23:162
    Content type: Research Published on:

  28. The proportion of older people with advanced dementia who will die in nursing homes is constantly growing. However, little is known about the dying phase, the type of symptoms, the management of symptoms and t...

    Authors: Stefanie Eicher, Nathan Theill, Heike Geschwindner, Caroline Moor, Albert Wettstein, Gabriela Bieri-Brüning, Christoph Hock, Mike Martin, Henrike Wolf and Florian Riese
    Citation: BMC Palliative Care 2016 15:80
    Content type: Study protocol Published on:

  29. The end of life for someone with dementia can present many challenges for practitioners; such as, providing care if there are swallowing difficulties. This study aimed to develop a toolkit of heuristics (rules...

    Authors: Nathan Davies, Rammya Mathew, Jane Wilcock, Jill Manthorpe, Elizabeth L. Sampson, Kethakie Lamahewa and Steve Iliffe
    Citation: BMC Palliative Care 2016 15:68
    Content type: Research article Published on:

    The Erratum to this article has been published in BMC Palliative Care 2016 15:77

  30. To support family caregivers of people with dementia in end-of-life decision making, a family booklet on comfort care has been adapted and adopted by several European jurisdictions since the original publicat...

    Authors: Laura Bavelaar, Adrienne McCann, Nicola Cornally, Irene Hartigan, Sharon Kaasalainen, Hana Vankova, Paola Di Giulio, Ladislav Volicer, Marcel Arcand, Jenny T. van der Steen and Kevin Brazil
    Citation: BMC Palliative Care 2022 21:76
    Content type: Research Published on:

  31. Hospitalisation of patients with advanced dementia is generally regarded as less preferable compared to care at home or in a nursing home. For patients with other diagnoses, young age has been associated with ...

    Authors: Lisa Martinsson, Staffan Lundström and Johan Sundelöf
    Citation: BMC Palliative Care 2020 19:135
    Content type: Research article Published on:

  33. Advance care planning (ACP) is a continuous, dynamic process of reflection and dialogue between an individual, those close to them and their healthcare professionals, concerning the individual’s preferences an...

    Authors: Ruth Piers, Gwenda Albers, Joni Gilissen, Jan De Lepeleire, Jan Steyaert, Wouter Van Mechelen, Els Steeman, Let Dillen, Paul Vanden Berghe and Lieve Van den Block
    Citation: BMC Palliative Care 2018 17:88
    Content type: Research article Published on:

  34. Heart failure (HF) afflicts 6.5 million Americans with devastating consequences to patients and their family caregivers. Families are rarely prepared for worsening HF and are not informed about end-of-life and...

    Authors: Ubolrat Piamjariyakul, Trisha Petitte, Angel Smothers, Sijin Wen, Elizabeth Morrissey, Stephanie Young, George Sokos, Alvin H. Moss and Carol E. Smith
    Citation: BMC Palliative Care 2019 18:119
    Content type: Study protocol Published on:

  35. Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitaliza...

    Authors: Falk Hoffmann, Anke Strautmann and Katharina Allers
    Citation: BMC Palliative Care 2019 18:77
    Content type: Research article Published on:

  37. Prognostic accuracy is important throughout all stages of the illness trajectory as it has implications for the timing of important conversations and decisions around care. Physicians often tend to over-estima...

    Authors: Nicole Williams, Kirsten Hermans, Joachim Cohen, Anja Declercq, Ahmed Jakda, James Downar, Dawn M. Guthrie and John P. Hirdes
    Citation: BMC Palliative Care 2022 21:174
    Content type: Research Published on:

  38. An integrated care network between emergency, specialized and primary care services can prevent repeated hospitalizations and the institutionalized death of terminally ill patients in palliative care (PC). To ...

    Authors: Jacqueline Resende Boaventura, Juliana Dias Reis Pessalacia, Aridiane Alves Ribeiro, Fabiana Bolela de Souza, Priscila Kelly da Silva Neto and Maristela Rodrigues Marinho
    Citation: BMC Palliative Care 2022 21:4
    Content type: Research article Published on:

  39. Residents living in long-term care homes (LTCH) have complex care needs, multiple chronic conditions, increasing frailty and cognitive impairment. A palliative approach that incorporates advance care planning ...

    Authors: Shirin Vellani, Elizabeth Green, Pereya Kulasegaram, Tamara Sussman, Abby Wickson-Griffiths and Sharon Kaasalainen
    Citation: BMC Palliative Care 2022 21:127
    Content type: Research Published on:

  40. Patients who have benefited from specialist intervention during periods of acute/complex palliative care needs often transition from specialist-to-primary care once such needs have been controlled. Effective c...

    Authors: Katharine Weetman, John I. MacArtney, Catherine Grimley, Cara Bailey and Jeremy Dale
    Citation: BMC Palliative Care 2024 23:156
    Content type: Study Protocol Published on:

  41. The Palliative Care Consult Service (PCCS) programme was among the first initiations in Hungary to provide palliative care for patients admitted to hospital. The PCCS team provides palliative care for mainly c...

    Authors: Antal T. Zemplényi, Ágnes Csikós, Marcell Csanádi, Maureen Rutten-van Mölken, Carmen Hernandez, János G. Pitter, Thomas Czypionka, Markus Kraus and Zoltán Kaló
    Citation: BMC Palliative Care 2020 19:41
    Content type: Research article Published on:

  42. Discomfort and distressing symptoms are common at the end of life, while people in this stage are often no longer able to express themselves. Technologies may aid clinicians in detecting and treating these sym...

    Authors: Jingyuan Xu, Hanneke J. A. Smaling, Jan W. Schoones, Wilco P. Achterberg and Jenny T. van der Steen
    Citation: BMC Palliative Care 2024 23:78
    Content type: Research Published on:

  43. Long-acting opioid formulations are advocated for maintaining pain control in chronic cancer pain. OROS® hydromorphone is a sustained-release formulation of hydromorphone that requires dosing once daily to mainta...

    Authors: Magdi Hanna and John Thipphawong
    Citation: BMC Palliative Care 2008 7:17
    Content type: Research article Published on:

  44. The COVID-19 pandemic has caused more than 462,417 deaths worldwide. A large number of patients with severe COVID-19 face death in hospital. Hospice care is truly a philosophy of care that delivers patient-cen...

    Authors: Ze-hong Zheng, Zhong-chen Luo, You Zhang, Wallace Chi Ho Chan, Jian-qiong Li, Jin Pang, Yu-ling Jia and Jiao Tang
    Citation: BMC Palliative Care 2020 19:188
    Content type: Research article Published on:

  45. Typically, dementia involves progressive cognitive and functional deterioration, leading to death. A palliative approach recognizes the inevitable health decline, focusing on quality of life. The approach is h...

    Authors: Christine Toye, Andrew L Robinson, Moyez Jiwa, Sharon Andrews, Fran McInerney, Barbara Horner, Kristi Holloway and Brigit Stratton
    Citation: BMC Palliative Care 2012 11:4
    Content type: Study protocol Published on:

  46. One of the strategies to promote the quality of palliative care in non-specialised settings is the appointment of palliative care nurse champions. It is unclear what the most effective model to implement the c...

    Authors: Marijanne Engel, Lia van Zuylen, Andrée van der Ark and Agnes van der Heide
    Citation: BMC Palliative Care 2021 20:34
    Content type: Research article Published on:

  47. A high percentage of people dying at home, and a low percentage of people being admitted to hospital and dying there are regarded as indicators of appropriate care at the end of life. However, performance stan...

    Authors: Mariska G. Oosterveld-Vlug, Marianne J. Heins, Manon S. A. Boddaert, Yvonne Engels, Agnes van der Heide, Bregje D. Onwuteaka-Philipsen, Anna K. L. Reyners and Anneke L. Francke
    Citation: BMC Palliative Care 2022 21:51
    Content type: Research Published on:

  48. Palliative care improves the quality of lives of patients and families affected by advanced illnesses through the prevention and relief of suffering. While palliative care is well established in developed coun...

    Authors: Tara Devi Laabar, Christobel Saunders, Kirsten Auret and Claire E. Johnson
    Citation: BMC Palliative Care 2021 20:8
    Content type: Research article Published on:

  50. China holds one fifth of the world’s population and faces a rapidly aging society. In its ambition to reach a health care standard comparable to developed countries by 2030, the implementation of palliative ca...

    Authors: Antonia M. Willemsen, Piret Paal, Silja Zhang, Stephen Mason and Frank Elsner
    Citation: BMC Palliative Care 2021 20:14
    Content type: Research article Published on:
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BMC Palliative Care

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