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  1. Pediatric shared decision-making (SDM) is a fundamental part of family-centered care. Pediatric palliative care (PPC) is one of the more difficult fields for healthcare providers when choosing to utilize SDM. ...

    Authors: Siyu Cai, Lei Cheng, Ruixin Wang, Xuan Zhou and Xiaoxia Peng
    Citation: BMC Palliative Care 2023 22:190

    The Correction to this article has been published in BMC Palliative Care 2024 23:23

  2. Access to palliative care is recognised as a human right, yet clear disparities exist. There have been recent appeals to examine people’s contexts and interactions with social systems which for many, adversely...

    Authors: Helen Butler, Merryn Gott, Doctor Kate Prebble, Doctor Sarah Fortune and Doctor Jackie Robinson
    Citation: BMC Palliative Care 2023 22:189
  3. Several studies have characterized the experiences of family members caring for patients undergoing chemotherapy; however, information about the experiences of older spousal caregivers with intensive caregivin...

    Authors: Kengo Hirayama, Tomoki Kuribara and Miho Oshikiri
    Citation: BMC Palliative Care 2023 22:188
  4. Physicians’ communication with patients and their families is important during both the disease diagnosis and prognosis stages and through the follow-up process. Effective physician communication improves pati...

    Authors: Natália Ubisse Schmauch, Emilia Pinto, Francisca Rego, Luísa Castro, Jahit Sacarlal and Guilhermina Rego
    Citation: BMC Palliative Care 2023 22:186
  5. Health-care professionals are confronted with patients who wish to end their lives through voluntarily stopping eating and drinking (VSED). During VSED, symptoms such as agitation, thirst or psychological dist...

    Authors: Yann-Nicolas Batzler, Manuela Schallenburger, Pia Maletzki, Theresa Tenge, Daniel Schlieper, Jacqueline Schwartz and Martin Neukirchen
    Citation: BMC Palliative Care 2023 22:185
  6. Thirst and dry mouth are common symptoms in terminally ill patients. It is known that family members usually request drips for their dying relative. Few studies have focused on thirst in terminally ill patient...

    Authors: Maria Friedrichsen, Nana Waldréus, Micha Milovanovic, Anne Söderlund Schaller, Pier Jaarsma and Tiny Jaarsma
    Citation: BMC Palliative Care 2023 22:184
  7. Specialist palliative home care (SPHC) aims to maintain and improve patients’ quality of life in the community setting. Symptom burden may differ between oncological and non-oncological patients. However, litt...

    Authors: Daniela Gesell, Farina Hodiamont, Julia Wikert, Eva Lehmann-Emele, Claudia Bausewein, Friedemann Nauck and Maximiliane Jansky
    Citation: BMC Palliative Care 2023 22:183
  8. Palliative care practitioners are increasingly caring for patients and families from diverse cultural backgrounds. There is growing awareness of the influence of culture on many aspects of care in the palliati...

    Authors: Colette Burke, Owen Doody and Barbara Lloyd
    Citation: BMC Palliative Care 2023 22:182
  9. A wide variety of screening tools for the need for specialist palliative care (SPC) have been proposed for the use in oncology. However, as there is no established reference standard for SPC need to compare th...

    Authors: Evelyn Müller, Michael Josef Müller, Katharina Seibel, Christopher Boehlke, Henning Schäfer, Carsten Klein, Maria Heckel, Steffen T. Simon and Gerhild Becker
    Citation: BMC Palliative Care 2023 22:181
  10. High quality end-of-life care is essential. Yet for those experiencing heart failure, the provision of high-quality end- of -life care can be challenging. The aim of this study was to explore Iranian nurses’ p...

    Authors: Mostafa Akbarian-Rokni, Marjan Mardani-Hamooleh, Mohammad Abbasi, Naima Seyedfatemi and Sally Pezaro
    Citation: BMC Palliative Care 2023 22:180
  11. We sought to identify innovative navigation programs across Canadian jurisdictions that target their services to individuals affected by life-limiting illness and their families, and articulate the principal c...

    Authors: Robin Urquhart, Cynthia Kendell, Kathryn Pfaff, Kelli Stajduhar, Linda Patrick, Carren Dujela, Sarah Scruton, Faith Fauteux and Grace Warner
    Citation: BMC Palliative Care 2023 22:179
  12. Perinatal palliative care is an emerging branch of children’s palliative care. This study sought to better understand the pattern of antenatal referrals and the role of a specialist paediatric palliative care ...

    Authors: Sophie Bertaud, Georgina Brightley, Nicola Crowley, Finella Craig and Dominic Wilkinson
    Citation: BMC Palliative Care 2023 22:177
  13. Various factors have been found to be associated with high levels of death anxiety experienced by oncology nurses. The aim of this study was to use a person-oriented approach to examine the death anxiety patte...

    Authors: Xian Chen, Mengyu Su, Anne Arber, Chengping Qiao, Jinfeng Wu, Cuihua Sun, Dan Wang, Hui Zhou and Zhu Zhu
    Citation: BMC Palliative Care 2023 22:176
  14. Home care nurses provide complex palliative care for patients who want to die in their own homes. This study aimed to explore home care nurses’ facilitation of planned home death to better understand nursing p...

    Authors: Anne Kristine Sørstrøm, Mette Spliid Ludvigsen and Ingjerd Gåre Kymre
    Citation: BMC Palliative Care 2023 22:175
  15. Quality of care at the end of life in hospitals is often perceived to be lower compared to the care that is provided to people who die in their own home. Documenting and measuring indicators of common end-of-l...

    Authors: F. M. Bijnsdorp, B. Schouten, A. K. L. Reyners, C. Wagner, A. L. Francke and S. M. van Schoten
    Citation: BMC Palliative Care 2023 22:174
  16. New routes for supply of eye tissue are needed in the UK to support transplant surgery and medical research. Hospice care (HC) and Hospital-based Palliative care (HPC) services represent potential supply route...

    Authors: Tracy Long-Sutehall, Anna Zatorska, Michelle Myall, Christina Faull, Adam Hurlow, Sarah Mollart, Clare Rayment, Jill Short, Jane Wale, Emma Winstanley and Mike Bracher
    Citation: BMC Palliative Care 2023 22:173
  17. Care givers of Palliated patients are at risk of adverse physical, psychosocial and emotional sequelae in varied nature. Efficient and valid assessment tools facilitate early detection to take corrective measu...

    Authors: U. Ramadasa, S. Silva, U. Udumulla, S. Perera and S. Lekamwasam
    Citation: BMC Palliative Care 2023 22:172
  18. The Richmond Agitation-Sedation Scale – Palliative version (RASS-PAL) tool is a brief observational tool to quantify a patient’s level of agitation or sedation. The objective of this study was to implement the...

    Authors: Shirley H. Bush, Katarzyna Bronicki, Michel Dionne, Natasha Lelievre, Peter G. Lawlor and Monisha Kabir
    Citation: BMC Palliative Care 2023 22:171
  19. One of the major challenges for healthcare professionals relates to awareness of patients’ preferences relative to how and when to break bad news and how much information should be disclosed in the eventuality...

    Authors: Ephrem Abathun Ayalew, Ditaba David Mphuthi and Kholofelo Lorraine Matlhaba
    Citation: BMC Palliative Care 2023 22:170
  20. Co-creation, characterized by artists and patients creating a joint work of art, may support patients with the integration of disruptive life events into their life story, such as living with cancer. Focusing...

    Authors: Yvonne Weeseman, Michael Scherer-Rath, Nirav Christophe, Henny Dörr, Esther Helmich, Mirjam A. G. Sprangers, Niels van Poecke and Hanneke W. M. van Laarhoven
    Citation: BMC Palliative Care 2023 22:169
  21. To translate and culturally adapt IPOS to the Greek population.

    Authors: Despina Anagnostou, Stylianos Katsaragakis, Irene Panagiotou, Elisabeth Patiraki and Aliki Tserkezoglou
    Citation: BMC Palliative Care 2023 22:168

    The Correction to this article has been published in BMC Palliative Care 2023 22:187

  22. The desire to be at home is one of the most important needs of patients with advanced, incurable cancers. However, palliative cancer patients may require inpatient hospital care for medical reasons. Virtual re...

    Authors: Christina Gerlach, Anja Greinacher, Bernd Alt-Epping and Cornelia Wrzus
    Citation: BMC Palliative Care 2023 22:167
  23. Multi-professional specialist palliative homecare (SPHC) teams care for palliative patients with complex symptoms. In Germany, the SPHC directive regulates care provision, but model contracts for each federal ...

    Authors: Maximiliane Jansky, Lia Heyl, Michaela Hach, Steven Kranz, Thomas Lehmann, Antje Freytag, Ulrich Wedding, Winfried Meißner, Sabine H. Krauss, Werner Schneider and Friedemann Nauck
    Citation: BMC Palliative Care 2023 22:166
  24. Health professionals and medical students have knowledge gaps about the law that governs end-of-life decision-making. There is a lack of dedicated training on end-of-life law and corresponding research on the ...

    Authors: Rachel Feeney, Lindy Willmott, Penny Neller, Shih-Ning Then, Patsy Yates and Ben White
    Citation: BMC Palliative Care 2023 22:165
  25. Oesophago-gastric cancer is an aggressive disease with a high rate of recurrence and mortality across the disease trajectory. Reduced psychosocial functioning has been evidenced amongst those with advanced dis...

    Authors: Cara Ghiglieri, Martin Dempster, Sam Wright and Lisa Graham-Wisener
    Citation: BMC Palliative Care 2023 22:164
  26. In Germany, palliative care in nursing homes is becoming increasingly important. Simultaneously, nursing homes are particularly affected by the COVID-19 pandemic due to their vulnerable residents leading to in...

    Authors: Anna Bußmann and Natalie Pomorin
    Citation: BMC Palliative Care 2023 22:163
  27. Little is known about the impact of the COVID-19 pandemic on families of children with chronic life-limiting conditions who died during the COVID-19 pandemic.

    Authors: Adam Rapoport, David B. Nicholas and Rosslynn T. Zulla
    Citation: BMC Palliative Care 2023 22:162
  28. Continuous deep sedation (CDS) can be used for patients at the end of life who suffer intolerably from severe symptoms that cannot be relieved otherwise. In the Netherlands, the use of CDS is guided by an nati...

    Authors: Madelon T Heijltjes, Ghislaine JMW van Thiel, Judith AC Rietjens, Agnes van der Heide, Geeske Hendriksen and Johannes JM van Delden
    Citation: BMC Palliative Care 2023 22:160
  29. Loss of appetite is a common nutrition symptom in patients with cancer. Understanding the trajectory of appetite could be of clinical use for prognostication in palliative cancer care. Our primary aim was to e...

    Authors: Charlotte Goodrose-Flores, Stephanie E. Bonn, Caritha Klasson, Maria Helde Frankling, Ylva Trolle Lagerros and Linda Björkhem-Bergman
    Citation: BMC Palliative Care 2023 22:159
  30. Healthcare professionals in palliative care are found to be confronted with moral challenges on a frequent basis. CURA is a low-threshold instrument for dialogical ethical reflection that was developed to deal...

    Authors: Malene van Schaik, Charlotte Kröger, Lisa Zuidema, Margreet Stolper, Guy Widdershoven, H. Roeline Pasman and Suzanne Metselaar
    Citation: BMC Palliative Care 2023 22:158
  31. Evidence-based palliative care requires comprehensive assessment and documentation. However, palliative care is not always systemically documented – this can have implications for team communication and patien...

    Authors: Ann Dadich, Martyna Gliniecka, Michelle Cull and Kerrie Womsley
    Citation: BMC Palliative Care 2023 22:157
  32. Palliative care is limited in Ethiopia, particularly in rural areas, where more than 78% of the population live. Current initiatives and research are focused on urban settings and are primarily donor dependent...

    Authors: Atsede Aregay, Margaret O’Connor, Jill Stow, Nicola Ayers and Susan Lee
    Citation: BMC Palliative Care 2023 22:156
  33. Palliative care is an approach that improves the quality of life of patients and their families who are facing challenges associated with life-threatening illness, through the prevention and relief of sufferin...

    Authors: Florbela Gonçalves and Margarida Gaudêncio
    Citation: BMC Palliative Care 2023 22:155
  34. The Measure of Moral Distress for Health Care Professionals (MMD-HP) scale corresponds to the update of the globally recognized Moral Distress Scale–Revised (MDS-R). Its purpose is to measure moral distress, w...

    Authors: Julianna Rodrigues Beltrão, Marianna Rodrigues Beltrão, Rafaella Stradiotto Bernardelli, Renato Soleiman Franco, Elizabeth G. Epstein and Carla Corradi-Perini
    Citation: BMC Palliative Care 2023 22:154
  35. Specialist palliative care (SPC) includes care for incurably ill patients and their family caregivers at home or on a palliative care ward until the very end of life. However, in the last days of life, patient...

    Authors: Anneke Ullrich, Sven Goldbach, Wiebke Hollburg, Bettina Wagener, Annette Rommel, Marten Müller, Denise Kirsch, Katrin Kopplin-Foertsch, Holger Schulz, Carsten Bokemeyer and Karin Oechsle
    Citation: BMC Palliative Care 2023 22:153
  36. Effective cooperation between a pediatric palliative care team (PPCT), primary treating specialists, patients and families is crucial for high quality care of children with complex life-limiting conditions. Se...

    Authors: Lucie Hrdlickova, Kristyna Polakova and Martin Loucka
    Citation: BMC Palliative Care 2023 22:152
  37. There is an increasing demand for universal, high-quality access to palliative care in Austria. To ensure this, the implementation of palliative care in the medical studies curriculum is essential. This is the...

    Authors: Véronique Toussaint, Piret Paal, Rainer Simader and Frank Elsner
    Citation: BMC Palliative Care 2023 22:151
  38. Although oncological palliative care is increasingly being offered by multidisciplinary teams, there is still a lack of data about some symptoms handled by these teams, such as dysphagia, in patients with adva...

    Authors: Danielle Nunes Moura Silva, Laélia Cristina Caseiro Vicente, Vanessa Laís Pontes Glória and Amélia Augusta de Lima Friche
    Citation: BMC Palliative Care 2023 22:150
  39. Palliative care aims to improve the quality of life of people with life-limiting illness and their families by addressing physical, psychological, social and spiritual suffering. Allied Health and Social Care ...

    Authors: Cindy V. Mendieta, Esther de Vries, Maria Elizabeth Gomez-Neva, Angela Maria Muñoz-Escudero, Jose Andrés Calvache and Tracey McConnell
    Citation: BMC Palliative Care 2023 22:149
  40. Measuring outcomes facilitates evaluation of palliative services for children, adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) conditions. Implementation of patient-rep...

    Authors: Heidi Holmen, Anette Winger, Simen A. Steindal, Kirsti Riiser, Charlotte Castor, Lisbeth Gravdal Kvarme, Kari L. Mariussen and Anja Lee
    Citation: BMC Palliative Care 2023 22:148
  41. Universal access to palliative care remains a distant goal in many low resource settings, despite the growing evidence of its benefits. The unmet need for palliative care is evident in Africa, but great stride...

    Authors: Natalie Palumbo, Alyssa Tilly, Eve Namisango, Christian Ntizimira, Lameck Thambo, Maria Chikasema and Gary Rodin
    Citation: BMC Palliative Care 2023 22:146
  42. One of the most important and ethically challenging decisions made for children with life-limiting conditions is withholding/withdrawing life-sustaining treatments (LST). As important (co-)decision-makers in t...

    Authors: Yajing Zhong, Alice Cavolo, Veerle Labarque and Chris Gastmans
    Citation: BMC Palliative Care 2023 22:145
  43. This nationwide survey studied the level of palliative care (PC) access for Chinese patients with cancer among cancer care providers either in tertiary general hospitals or cancer hospitals in China.

    Authors: Xiaomei Li, Xin Shelley Wang, Haili Huang, Miao Liu, Yinan Wu, Jiaojiao Qiu, Boran Zhang, Linhong Cui and David Hui
    Citation: BMC Palliative Care 2023 22:144
  44. CAPACITI is a virtual education program that teaches primary care teams how to provide an early palliative approach to care. After piloting its implementation, we conducted an in-depth qualitative study with C...

    Authors: Midori Matthew, Daryl Bainbridge, Valerie Bishop, Christina Sinding, Samantha Winemaker, Frances Kilbertus, Katherine Kortes-Miller and Hsien Seow
    Citation: BMC Palliative Care 2023 22:143
  45. Interventions such as advance care planning (ACP), technology, or access to euthanasia may increase the sense of control over the end of life. In people with advanced dementia, the loss of cognitive and physic...

    Authors: Hanneke J.A. Smaling, Xu Jingyuan, Miharu Nakanishi, Shiri Shinan-Altman, David R. Mehr, Lukas Radbruch, Jan Gaertner, Perla Werner, Wilco P. Achterberg and Jenny T. van der Steen
    Citation: BMC Palliative Care 2023 22:142
  46. Paediatric palliative care is needed now more than ever. Medical and technological advances mean that children with complex chronic conditions are surviving longer, necessitating longitudinal support from comm...

    Authors: Laure Dombrecht, Ana Lacerda, Joanne Wolfe and Jennifer Snaman
    Citation: BMC Palliative Care 2023 22:141

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