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  1. Despite increased annual mortality in long-term care (LTC) homes, research has shown that care of dying residents and their families is currently suboptimal in these settings. The purpose of this study was to ...

    Authors: Sharon Kaasalainen, Tamara Sussman, Genevieve Thompson, Lynn McCleary, Paulette V. Hunter, Lorraine Venturato, Abigail Wickson-Griffiths, Jenny Ploeg, Deborah Parker, Shane Sinclair, Vanina Dal Bello-Haas, Marie Earl and John J. You

    Citation: BMC Palliative Care 2020 19:107

    Content type: Research article

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  2. Although cancer patients experience distressing symptoms and health-related changes in their quality of life, they may report positive emotional states. The lives of informal caregivers of cancer patients may ...

    Authors: Mayara Goulart de Camargos, Bianca Sakamoto Ribeiro Paiva, Marco Antônio de Oliveira, Paula de Souza Ferreira, Vinicius Tolentino Nardoto de Almeida, Sandra de Andrade Cadamuro, Carla Simone Leite de Almeida and Carlos Eduardo Paiva

    Citation: BMC Palliative Care 2020 19:106

    Content type: Research article

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  3. Palliative care is a patient-centred, integrated approach for improving quality of life for both patients facing life-threatening illnesses and for their families. Although there has been increased interest in...

    Authors: Sanghee Kim, Kyunghwa Lee and Sookyung Kim

    Citation: BMC Palliative Care 2020 19:105

    Content type: Research article

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  4. Evaluation of palliative care services is crucial in order to ensure high quality care and to plan future services in light of growing demand. There is also an acknowledgement of the need to better understand ...

    Authors: Lynn Sudbury-Riley, Philippa Hunter-Jones and Ahmed Al-Abdin

    Citation: BMC Palliative Care 2020 19:104

    Content type: Technical advance

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  5. Despite advances in surgery, radiotherapy, and chemotherapy, pancreatic adenocarcinoma often progresses rapidly and causes death. The physical decline of these patients is expected to impact their quality of l...

    Authors: Berta Laquente, Teresa Macarulla, Cristina Bugés, Marta Martín, Carlos García, Carles Pericay, Sandra Merino, Laura Visa, Teresa Martín, Manuela Pedraza, Beatriz Carnero, Raquel Guardeño, Helena Verdaguer, Alejandro Mut, David Vilanova and Adelaida García

    Citation: BMC Palliative Care 2020 19:103

    Content type: Research article

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  6. The Barriers Questionnaire II (BQ-II) was developed to assess barriers to effective pain management. In this study, we aimed to assess the reliability and validity of the newly developed Japanese version of th...

    Authors: Naoki Sakakibara, Hiroko Komatsu, Mikako Takahashi, Hideko Yamauchi, Teruo Yamauchi and Ardith Z. Doorenbos

    Citation: BMC Palliative Care 2020 19:102

    Content type: Research article

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  7. The interest in physiotherapy programs for individuals in hospice is increasing. The aim of our study was to assess the impact of a multi-component, individualized physiotherapy program on the functional and e...

    Authors: Agnieszka Ćwirlej-Sozańska, Agnieszka Wójcicka, Edyta Kluska, Anna Stachoń and Anna Żmuda

    Citation: BMC Palliative Care 2020 19:101

    Content type: Research article

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  8. While many Aotearoa/New Zealanders are receiving excellent palliative care the Pacific populations have limited access to available hospice and palliative care services. Little research has been conducted to i...

    Authors: Sunia Foliaki, Veisinia Pulu, Hayley Denison, Mark Weatherall and Jeroen Douwes

    Citation: BMC Palliative Care 2020 19:100

    Content type: Research article

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  9. Continuous subcutaneous infusions (CSCIs) are commonly used in the United Kingdom as a way of administering medication to patients requiring symptom control when the oral route is compromised. These infusions ...

    Authors: J. Baker, A. Dickman, S. Mason, M. Bickerstaff, R. Jackson, A. McArdle, I. Lawrence, F. Stephenson, N. Paton, J. Kirk, B. Waters and J. Ellershaw

    Citation: BMC Palliative Care 2020 19:99

    Content type: Research article

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  10. The ERANet-LAC CODE (Care Of the Dying Evaluation) international survey assessed quality of care for dying cancer patients in seven countries, by use of the i-CODE questionnaire completed by bereaved relatives...

    Authors: Marit Irene Tuen Hansen, Dagny Faksvåg Haugen, Katrin Ruth Sigurdardottir, Anne Kvikstad, Catriona R. Mayland and Margrethe Aase Schaufel

    Citation: BMC Palliative Care 2020 19:98

    Content type: Research article

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  11. Spiritual care is frequently cited as a key component of hospice care in Taiwanese healthcare and beyond. The aim of this research is to gauge physicians and nurses’ self-reported perspectives and clinical pra...

    Authors: Zoe Tao, Poshu Wu, Amber Luo, Tzu-Lin Ho, Ching-Yu Chen and Shao-Yi Cheng

    Citation: BMC Palliative Care 2020 19:96

    Content type: Research article

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  12. Research on the patient experience of receiving palliative care across a number of settings is increasing, but the majority of these investigations are situated within the context of developed countries. There...

    Authors: Konstantina Vasileiou, Paula Smith and Ashraf Kagee

    Citation: BMC Palliative Care 2020 19:95

    Content type: Research article

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  13. Although palliative care providers, patients, and their families rely heavily on accurate prognostication, the prognostic value of electrolyte imbalance has received little attention.

    Authors: Min-Seok Seo, In Cheol Hwang, Jaehun Jung, Hwanhee Lee, Jae Hee Choi and Jae-Yong Shim

    Citation: BMC Palliative Care 2020 19:94

    Content type: Research article

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  14. The 3 Wishes Project (3WP) is an end-of-life program that honors the dignity of dying patients by fostering meaningful connections among patients, families, and clinicians. Since 2013, it has become embedded i...

    Authors: Meredith Vanstone, Thanh H. Neville, Marilyn E. Swinton, Marina Sadik, France J. Clarke, Allana LeBlanc, Benjamin Tam, Alyson Takaoka, Neala Hoad, Jennifer Hancock, Sarah McMullen, Brenda Reeve, William Dechert, Orla M. Smith, Gyan Sandhu, Julie Lockington…

    Citation: BMC Palliative Care 2020 19:93

    Content type: Research article

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  15. Palliative care should be holistic, but spiritual issues are often overlooked. General practitioners and nurses working together in PaTz-groups (palliative home care groups) consider spiritual issues in pallia...

    Authors: Hanna T. Klop, Ian Koper, Bart P. M. Schweitzer, Esli Jongen and Bregje D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2020 19:92

    Content type: Research article

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  16. Many deaths in Norway occur in medical wards organized to provide curative treatment. Still, medical departments are obliged to meet the needs of patients at the end of life. Here, we analyse the electronic pa...

    Authors: Laila Hov, Oddgeir Synnes and Guri Aarseth

    Citation: BMC Palliative Care 2020 19:91

    Content type: Research article

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  17. In the last years of life, burden of disease and disability and need of health- and social care often increase. Social, functional and psychological factors may be important in regard to social- and health car...

    Authors: Jenny Hallgren, Linda Johansson, Christina Lannering, Marie Ernsth Bravell and Catharina Gillsjö

    Citation: BMC Palliative Care 2020 19:90

    Content type: Research article

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  18. There is an increased interest in the analysis of large, national palliative care data sets including patient reported outcomes (PROs). No study has investigated if it was best to include or exclude data from ...

    Authors: Maiken Bang Hansen, Morten Aagaard Petersen, Lone Ross and Mogens Groenvold

    Citation: BMC Palliative Care 2020 19:89

    Content type: Research article

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  19. Despite 50 years of modern palliative care (PC), a misunderstanding of its purpose persists. The original message that PC is focused on total care, helping to live until the person dies, is being replaced and ...

    Authors: Carla Reigada, Maria Arantzamendi and Carlos Centeno

    Citation: BMC Palliative Care 2020 19:88

    Content type: Research article

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  20. The association between palliative care and life-sustaining treatment following emergency department (ED) resuscitation is unclear. This study aims to analyze the usage of palliative care and life-sustaining t...

    Authors: Chih-Yuan Lin and Yue-Chune Lee

    Citation: BMC Palliative Care 2020 19:87

    Content type: Research article

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  21. Lung cancer has a high impact on both patients and relatives due to the high disease burden and short life expectancy. Previous studies looked into treatment goals patients have before starting a systemic trea...

    Authors: Adinda Mieras, Bregje D. Onwuteaka-Philipsen, Annemarie Becker-Commissaris, Jose C. M. Bos and H. Roeline W. Pasman

    Citation: BMC Palliative Care 2020 19:86

    Content type: Research article

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  22. French legislation about sedation in palliative medicine evolved in 2016 with the introduction of a right to deep and continuous sedation, maintained until death. The objective was to describe midazolam sedati...

    Authors: Vincent Gamblin, Vincent Berry, Emmanuelle Tresch-Bruneel, Michel Reich, Arlette Da Silva, Stéphanie Villet, Nicolas Penel and Chloé Prod’Homme

    Citation: BMC Palliative Care 2020 19:85

    Content type: Research article

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  23. It is important to understand the total burden of COPD and thereby be able to identify patients who need more intensive palliative care to avoid deteriorated quality of life. The aim of this study was to descr...

    Authors: D. G. Bove, M. Lavesen and B. Lindegaard

    Citation: BMC Palliative Care 2020 19:84

    Content type: Research article

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  24. The aim of this study was to analyse the buffering effect of individual, social and organisational resources on health and intention to leave the profession in the context of burden due to quantitative job dem...

    Authors: Elisabeth Diehl, Sandra Rieger, Stephan Letzel, Anja Schablon, Albert Nienhaus, Luis Carlos Escobar Pinzon and Pavel Dietz

    Citation: BMC Palliative Care 2020 19:83

    Content type: Research article

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  25. The present study aimed to characterize factors associated with patients issued DNR orders during hospitalization who are discharged alive without any instruction orders by physicians regarding end-of-life tre...

    Authors: Tomoari Mori, Katsumi Mori, Eisuke Nakazawa, Seiji Bito, Yoshiyuki Takimoto and Akira Akabayashi

    Citation: BMC Palliative Care 2020 19:82

    Content type: Research article

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  26. The assessment of patients’ quality of life (QOL) is essential when evaluating the outcome of palliative care; however, no instruments have been validated for measuring symptoms and QOL in patients receiving p...

    Authors: Leslye Rojas-Concha, Maiken Bang Hansen, Morten Aagaard Petersen and Mogens Groenvold

    Citation: BMC Palliative Care 2020 19:81

    Content type: Research article

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  27. Advance care planning (ACP) facilitates identification and documentation of patients’ treatment preferences. Its goal aligns with that of palliative care – optimizing quality of life of seriously ill patients....

    Authors: Johnny T. K. Cheung, Doreen Au, Anthony H. F. Ip, Jenny Chan, Kenway Ng, Lok Cheung, Jacqueline Yuen, Elsie Hui, Jenny Lee, Raymond Lo and Jean Woo

    Citation: BMC Palliative Care 2020 19:80

    Content type: Research article

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  28. Difficulties in identifying patients at risk of clinical deterioration or death represent one of the main barriers to Palliative Care (PC) development in the community. Currently, no specific Italian tools aim...

    Authors: Giuseppe Casale, Caterina Magnani, Renato Fanelli, Laura Surdo, Mauro Goletti, Kirsty Boyd, Daniela D’Angelo and Chiara Mastroianni

    Citation: BMC Palliative Care 2020 19:79

    Content type: Research article

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  29. Spirituality can give meaning to life, providing support and guidance in complex situations. Despite its importance in palliative care, the role of spirituality for family caregivers of patients under exclusiv...

    Authors: Paula Menis Vigna, Isac de Castro and Renata Rego Lins Fumis

    Citation: BMC Palliative Care 2020 19:77

    Content type: Research article

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  30. Anticancer treatment exposes patients to negative consequences such as increased toxicity and decreased quality of life, and there are clear guidelines recommending limiting use of aggressive anticancer treatm...

    Authors: Ellinor Christin Haukland, Christian von Plessen, Carsten Nieder and Barthold Vonen

    Citation: BMC Palliative Care 2020 19:76

    Content type: Research article

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  31. Symptom assessment is essential in palliative care, but holds challenges concerning implementation and relevance. This study aims to evaluate patients’ main symptoms and problems at admission to a specialist i...

    Authors: Anja Coym, Anneke Ullrich, Lisa Kathrin Hackspiel, Mareike Ahrenholz, Carsten Bokemeyer and Karin Oechsle

    Citation: BMC Palliative Care 2020 19:75

    Content type: Research article

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  32. The purpose of this paper is to describe how end-of-life care is managed when life-support limitation is decided in a Pediatric Intensive Care Unit and to analyze the influence of the further development of th...

    Authors: Sara Bobillo-Perez, Susana Segura, Monica Girona-Alarcon, Aida Felipe, Monica Balaguer, Lluisa Hernandez-Platero, Anna Sole-Ribalta, Carmina Guitart, Iolanda Jordan and Francisco Jose Cambra

    Citation: BMC Palliative Care 2020 19:74

    Content type: Research article

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  33. Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly out...

    Authors: Maria João Cardoso Teixeira, Wilson Abreu, Nilza Costa and Matthew Maddocks

    Citation: BMC Palliative Care 2020 19:73

    Content type: Research article

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  34. Nav-CARE is a volunteer-led intervention designed to build upon strategic directions in palliative care: a palliative approach to care, a public health/compassionate community approach to care, and enhancing t...

    Authors: Barbara Pesut, Wendy Duggleby, Grace Warner, Emily Kervin, Paxton Bruce, Elisabeth Antifeau and Brenda Hooper

    Citation: BMC Palliative Care 2020 19:72

    Content type: Research article

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  35. Informal caregivers represent the foundation of the palliative care workforce and are the main providers of end of life care. Financial pressures are among the most serious concerns for many carers and the fin...

    Authors: Clare Gardiner, Jackie Robinson, Michael Connolly, Claire Hulme, Kristy Kang, Christine Rowland, Phil Larkin, David Meads, Tessa Morgan and Merryn Gott

    Citation: BMC Palliative Care 2020 19:71

    Content type: Research article

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  36. Caring for patients with advanced or terminal diseases can confront family caregivers (FC) with ethical challenges. The present study aims at tracing paths connected to ethical challenges among FC of advanced ...

    Authors: Anneke Ullrich, Marianna Theochari, Corinna Bergelt, Gabriella Marx, Katharina Woellert, Carsten Bokemeyer and Karin Oechsle

    Citation: BMC Palliative Care 2020 19:70

    Content type: Research article

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  37. patients with palliative needs often experience high symptom burden which causes suffering to themselves and their families. Depression and psychological distress should not be considered a “normal event” in a...

    Authors: Bárbara Antunes, Pedro Pereira Rodrigues, Irene J. Higginson and Pedro Lopes Ferreira

    Citation: BMC Palliative Care 2020 19:69

    Content type: Research article

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  38. Patients in the last phase of their lives often use many medications. Physicians tend to lack awareness that reviewing the usefulness of medication at the end of patients’ lives is important. The aim of this s...

    Authors: Bregje A. A. Huisman, Eric C. T. Geijteman, Marianne K. Dees, Noralie N. Schonewille, Margriet Wieles, Lia van Zuylen, Karolina M. Szadek and Agnes van der Heide

    Citation: BMC Palliative Care 2020 19:68

    Content type: Research article

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  39. Early integration of palliative care concurrently to standard cancer care is associated with several benefits for patients and their caregivers. However, communication barriers on part of the caring physicians...

    Authors: Nele Harnischfeger, Hilke M. Rath, Anneke Ullrich, Bernd Alt-Epping, Anne Letsch, Peter Thuss-Patience, Carsten Bokemeyer, Karin Oechsle and Corinna Bergelt

    Citation: BMC Palliative Care 2020 19:67

    Content type: Study protocol

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  40. The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and...

    Authors: Eleanor Wilson, Glenys Caswell, Asam Latif, Claire Anderson, Christina Faull and Kristian Pollock

    Citation: BMC Palliative Care 2020 19:66

    Content type: Research article

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  41. Although statements on the competencies required from physicians working within palliative care exist, these requirements have not been described within different levels of palliative care provision by multi-p...

    Authors: Hanna-Leena Melender, Minna Hökkä, Tiina Saarto and Juho T. Lehto

    Citation: BMC Palliative Care 2020 19:65

    Content type: Research article

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  42. Chronic breathlessness is a recognized clinical syndrome that severely impacts patients and carers, who become increasingly restricted in their daily activities. Often, patients become reliant on their carers,...

    Authors: Diana H. Ferreira, Slavica Kochovska, Aaron Honson, Jane L. Phillips and David C. Currow

    Citation: BMC Palliative Care 2020 19:64

    Content type: Research article

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  43. Nurses are involved in providing end-of-life care for end stage individuals and their self-efficacy is one of the key factors bearing on such care. The purpose of this study was to determine the effect of pall...

    Authors: Fatemeh Dehghani, Maasoumeh Barkhordari-Sharifabad, Maryam Sedaghati-kasbakhi and Hossein Fallahzadeh

    Citation: BMC Palliative Care 2020 19:63

    Content type: Research article

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  44. The working group for palliative medicine within the Comprehensive Cancer Center (CCC) network funded by the German Cancer Aid in Germany has developed and published 14 Standard Operating Procedures (SOPs) for...

    Authors: Sarah Lödel, Christoph Ostgathe, Maria Heckel, Karin Oechsle and Susanne Gahr

    Citation: BMC Palliative Care 2020 19:62

    Content type: Research article

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  45. Patients with advanced cancer, receiving at-home palliative care, are subject to numerous symptoms that are changeable and often require attention, a stressful situation that also impacts on the family caregiv...

    Authors: Inmaculada Valero-Cantero, Francisco Javier Martínez-Valero, Milagrosa Espinar-Toledo, Cristina Casals, Francisco Javier Barón-López and María Ángeles Vázquez-Sánchez

    Citation: BMC Palliative Care 2020 19:61

    Content type: Study protocol

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  46. Pain is a prevalent symptom at the end of life and negatively impacts quality of life. Despite this, little population level data exist that describe pain frequency and associated factors at the end of life. T...

    Authors: A. Meaghen Hagarty, Shirley H. Bush, Robert Talarico, Julie Lapenskie and Peter Tanuseputro

    Citation: BMC Palliative Care 2020 19:60

    Content type: Research article

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  47. The significance of metaphors for the experience of cancer has been the topic of extensive previous research, with “Battle” and “Journey” metaphors standing out as key. Adaptation to the patient’s use of metap...

    Authors: Charlotte Hommerberg, Anna W. Gustafsson and Anna Sandgren

    Citation: BMC Palliative Care 2020 19:59

    Content type: Research article

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  48. Voluntary work plays a significant role in hospice care, but international research has mainly been conducted on the mental health and fear of death of paid hospice staff. The aim of the present study was to c...

    Authors: Ágnes Zana, Adrienne Kegye, Edit Czeglédi and Katalin Hegedűs

    Citation: BMC Palliative Care 2020 19:58

    Content type: Research article

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